Starting Day 5, Part III at G.F. Strong, the Vancouver physical rehab centre, and have to admit that I'm feeling a little wonky. A good chunk of that could be that I was out last night for two periods at the Vancouver Giants-Kelowna Rockets' game.
After a bout with Solitary Plasmacytoma cancer and eight back surgeries, I'm still not ready for much excitement. We did watch the game from the stands, rather than the Giants' suite like last time with Carol-Ann and I, so that's a step. I was still worn out by the second intermission and wasn't the least little bit on getting caught up in the crowd afterwards, either.
En route to the game (I went with Carla "Solitary Plasmacytoma hater" McAloney, allowing Carol-Ann a hall pass to hang with her buddies) I got a text from Joey Kenward (somewhat shameless name drop) who was in Moose Jaw to celebrate the final days of the rink there, the Crushed Can.
Jo-Jo, being Jo-Jo, had to remind me of my most recent visit to the Can. (That's what the somewhat shameless name drop was for.) It was 2006, the Giants were wrapping up a four-game sweep of the Moose Jaw Warriors, and I had food poisoning and I had it bad.
It could have been worse. Once the symptoms started coming on after a questionable helping of chicken wings, I went straight to the team doc, who gave me some meds that seemed to work a little. (I knew to do this after failing in that regard after getting food poisoning during a Canucks' 2004 playoff game in Calgary. You really haven't been sick until you've been sick in a public washroom with drunk hockey fans. And that's all I really need to say about that.)
I did manage to pull off what I thought was a fairly entertaining pre-game radio interview. The rink had a pronounced dip in the middle, so from the pressbox on the north side you can't see the top eight rows of seats south side. Jo-Jo had always explained to me as "If the bus driver gets in a knife fight in row 15, I can't tell from the press box. I was getting to that part of the story and realized I couldn't use Joey's version, so I blurted out the first thing that came to mind.
"If strippers were performing an act in Row 15, I wouldn't know from the press box."
Yeah, stay classy.
With all that, I wasn't out the woods from the sickness, though. By game time, I was probably stumbling around worse than I do now. (My walking, albeit with a walker has improved drastically of late.) After the game, when I went to get quotes, several players started chanting "Chicken Wings, Chicken Wings." They had obviously heard. Team captain Mark Fistric hadn't heard or had heard and didn't care because he picked me up in a bear hug, started carrying me around and said, "You're my dawg...you're my dawg." (I'm a big dude now, but I was a bigger dude then. The fact some 19-year-old kid could do that scared me.)
By the time I finished my stories, I couldn't step up for long periods, so I had to crawl my way down the stairs and out of the stands.
Nice.
Fast forward to today, I'm feeling as well as I've felt in months. I still get frustrated with how wobbly I am, but I'm trying to be patient. (I'm supposed to cook on Tuesday and stand for several minutes without any asssistance, and that's scaring me.)
We're on the Spine Floor this time, after being on the Brain Injury and Neuro-muscular floors on our past two trips, which means we get a whole new team of doctors, physios and occupational therapists. Everybody seems to be as ultra professional, just like the teams we've had here before.
Saturday, March 19, 2011
Monday, March 7, 2011
Youth was serving: fresh-faced plastic surgeons lend hand in cancer comeback
Maybe they grow plastic surgeons real young around here. Or maybe they practice face lifts on each other.
Or maybe I am firmly an old fart.
Whatever the reason, my eighth surgery, a "flap," to help close the wound in my back, has made me aware of how many apparent young phenoms work in plastics at VGH. We've met a handful of surgeons leading up to and following my operation last Tuesday and, to be honest, I was continually left making Doogie Howser references. Of course, I made them only to myself and Carol-Ann, since this group probably never saw the TV show, which was in production from 1989-93.
In interest of full disclosure (my old favourite line makes a return), the treatment we've received from the plastics (as they are called)has been top shelf. They were very good about letting us know their A plan and their fallback strategy in case things didn't work initially.
Luckily for Carol-Ann and I, their idea came together on the first go. In fact, Carol-Ann says that plastics surgeon Dr. Boyle told her, "Things couldn't have gone better."
To Steve-it-down, the doctors took parts of my trapezius muscles and folded them to fill a void in the middle of my back, which was created by three infection washout surgeries. The infection was a result of needing a back reconstruction surgery just days after completing my 20th radiation treatment, which was due to a Solitary Plasmacytoma tumor camping out in my T-2 vertebrae. (My good friend Carla McAloney says that I don't have to mention the Solitary Plasmacytoma every blog. I say, "What does she have against a Solitary Plasmacytoma?" Or maybe
she doesn't appreciate new readers, ones who haven't heard about my Solitary Plasmacytoma? Or maybe doesn't like big words, like Solitary Plasmacytoma? Oh, Carla.)
Our spine surgeon, Dr. Robert Lee, tried to get the wound to close, but the combination of radiated skin and nothing behind it to stitch to made it impossible.
For what it is worth, this likely the most pain I've been in since the early stages of the Solitary Plasmacytoma (Take that, Snarla). The plastics say it's completely normal.
I should go back to GF Strong for a third try at rehab later this week hopefully.
Or maybe I am firmly an old fart.
Whatever the reason, my eighth surgery, a "flap," to help close the wound in my back, has made me aware of how many apparent young phenoms work in plastics at VGH. We've met a handful of surgeons leading up to and following my operation last Tuesday and, to be honest, I was continually left making Doogie Howser references. Of course, I made them only to myself and Carol-Ann, since this group probably never saw the TV show, which was in production from 1989-93.
In interest of full disclosure (my old favourite line makes a return), the treatment we've received from the plastics (as they are called)has been top shelf. They were very good about letting us know their A plan and their fallback strategy in case things didn't work initially.
Luckily for Carol-Ann and I, their idea came together on the first go. In fact, Carol-Ann says that plastics surgeon Dr. Boyle told her, "Things couldn't have gone better."
To Steve-it-down, the doctors took parts of my trapezius muscles and folded them to fill a void in the middle of my back, which was created by three infection washout surgeries. The infection was a result of needing a back reconstruction surgery just days after completing my 20th radiation treatment, which was due to a Solitary Plasmacytoma tumor camping out in my T-2 vertebrae. (My good friend Carla McAloney says that I don't have to mention the Solitary Plasmacytoma every blog. I say, "What does she have against a Solitary Plasmacytoma?" Or maybe
she doesn't appreciate new readers, ones who haven't heard about my Solitary Plasmacytoma? Or maybe doesn't like big words, like Solitary Plasmacytoma? Oh, Carla.)
Our spine surgeon, Dr. Robert Lee, tried to get the wound to close, but the combination of radiated skin and nothing behind it to stitch to made it impossible.
For what it is worth, this likely the most pain I've been in since the early stages of the Solitary Plasmacytoma (Take that, Snarla). The plastics say it's completely normal.
I should go back to GF Strong for a third try at rehab later this week hopefully.
Sunday, February 27, 2011
Back to back surgery: weepy wound returns us to VGH for operation No. 8
Apparently I have a thing for even numbers.
An eighth surgery will likely come Tuesday at VGH since the wound in my back won't close properly. A bunch of surgeries, along with 20 radiation sessions for the Solitary Plasmacytoma tumour that started this whole mess, can do that, I reckon.
Dr. Robert Lee, our spine surgeon at VGH, has twice added extra stitches, but to no avail. I am not sure what the plan is; Dr. Lee mentioned plastic surgery.
I am not sure how badly this sets back my rehab at GF Strong, but Carol-Ann and I have been set back before and regrouped.
This will only make the party when I get home that much sweeter.
An eighth surgery will likely come Tuesday at VGH since the wound in my back won't close properly. A bunch of surgeries, along with 20 radiation sessions for the Solitary Plasmacytoma tumour that started this whole mess, can do that, I reckon.
Dr. Robert Lee, our spine surgeon at VGH, has twice added extra stitches, but to no avail. I am not sure what the plan is; Dr. Lee mentioned plastic surgery.
I am not sure how badly this sets back my rehab at GF Strong, but Carol-Ann and I have been set back before and regrouped.
This will only make the party when I get home that much sweeter.
Saturday, February 26, 2011
Grin and chair it: people's impression of my wheel transport was all in my mixed-up head
Went to the Vancouver Giants-Chilliwack Bruins game Friday night and learned two things: (1) the Giants don't always know what to do with the lead; and (2) I don't always know enough to ignore the voices in my head.
I should be in my seventh season covering junior hockey, and the Giants in particular, for the Province newspaper and www.theprovince.com (shameless plug for my employer), but a Solitary Plasmacytoma tumour in my T-2 vertebrae and six subsequent surgeries to put my back back together has left me on the sidelines for much of the campaign.
I made my first trip to the Pacific Coliseum since November on Friday, and was freaked out beforehand about how people were going to handle me being in a wheelchair. My strength has improved greatly in the past couple of weeks, and the good folks at G.F. Strong rehab in Vancouver are pointing to me being home by the end of March, but I just felt that the darn chair would say something completely different to everyone.
If it did, they hid it well. I did not feel any sort of pity. People were happy to see me, and happy to see Carol-Ann. We got a few brief questions about my health, and then about how Carol-Ann was doing. (That's one of the bright spots in this nightmare: the attention that Carol-Ann has received for how well she's supported me. I'm not the least little bit surprised, but it's nice to see other people picking up on the calibre of human being she is.)
Mostly, we talked about everything other than my health. We talked about hockey and about the restaurant business (Carol-Ann works for Earl's...shameless plug for her employer, who has been so amazing to us that words don't do the support justice) and about cell phones. (We sat with Lewis Buble for awhile, and the father of crooner Michael went on about how cells have changed how he communicates with his family.)
Chalk up another loss for my restless mind, which always tends to be focussed on the worst-case scenario. It was highly entertaining for us, especially when you consider that I haven't been out of VGH or G.F. Strong for any sense of time since November.
We did cheat a little, though. The Giants opened up their suite to us, so we made a beeline there, rather than try to brave the crowd of 10,000 or so -- many were there to celebrate Milan Lucic, the 2007 Memorial Cup MVP, being added to the Giants' Ring of Honour. (Special thanks to Ron and Michele Toigo for getting us into the box. Ron and son Peter were the first people to visit Carol-Ann and I when were initially admitted to VGH back in October and the Toigo family have been hugely supportive throughout our ordeal.)
We left after two periods, namely because I was worn out. I feel bad, because I wanted to see Vancouver general manager Scott Bonner, coach Don Hay and a bunch of Giant players, but they probably weren't in a visiting mood, after coughing up 2-0 and 4-2 leads in a 6-5 loss to their Fraser Valley rivals.
I do look forward to going back again sometime soon to the Coliseum soon. Next time, I'll try to leave any preconceived notions at home.
I should be in my seventh season covering junior hockey, and the Giants in particular, for the Province newspaper and www.theprovince.com (shameless plug for my employer), but a Solitary Plasmacytoma tumour in my T-2 vertebrae and six subsequent surgeries to put my back back together has left me on the sidelines for much of the campaign.
I made my first trip to the Pacific Coliseum since November on Friday, and was freaked out beforehand about how people were going to handle me being in a wheelchair. My strength has improved greatly in the past couple of weeks, and the good folks at G.F. Strong rehab in Vancouver are pointing to me being home by the end of March, but I just felt that the darn chair would say something completely different to everyone.
If it did, they hid it well. I did not feel any sort of pity. People were happy to see me, and happy to see Carol-Ann. We got a few brief questions about my health, and then about how Carol-Ann was doing. (That's one of the bright spots in this nightmare: the attention that Carol-Ann has received for how well she's supported me. I'm not the least little bit surprised, but it's nice to see other people picking up on the calibre of human being she is.)
Mostly, we talked about everything other than my health. We talked about hockey and about the restaurant business (Carol-Ann works for Earl's...shameless plug for her employer, who has been so amazing to us that words don't do the support justice) and about cell phones. (We sat with Lewis Buble for awhile, and the father of crooner Michael went on about how cells have changed how he communicates with his family.)
Chalk up another loss for my restless mind, which always tends to be focussed on the worst-case scenario. It was highly entertaining for us, especially when you consider that I haven't been out of VGH or G.F. Strong for any sense of time since November.
We did cheat a little, though. The Giants opened up their suite to us, so we made a beeline there, rather than try to brave the crowd of 10,000 or so -- many were there to celebrate Milan Lucic, the 2007 Memorial Cup MVP, being added to the Giants' Ring of Honour. (Special thanks to Ron and Michele Toigo for getting us into the box. Ron and son Peter were the first people to visit Carol-Ann and I when were initially admitted to VGH back in October and the Toigo family have been hugely supportive throughout our ordeal.)
We left after two periods, namely because I was worn out. I feel bad, because I wanted to see Vancouver general manager Scott Bonner, coach Don Hay and a bunch of Giant players, but they probably weren't in a visiting mood, after coughing up 2-0 and 4-2 leads in a 6-5 loss to their Fraser Valley rivals.
I do look forward to going back again sometime soon to the Coliseum soon. Next time, I'll try to leave any preconceived notions at home.
Wednesday, February 23, 2011
Chair wear and tear: Trying to find ways to cope with having to wheel into a Giants' game
I'm going to the Vancouver Giants' game Friday night. Part of me is looking at it as another Christmas morning. Part of me of scared to bits.
I've covered the Giants for the Province (shameless plug for my employer) since the 2004-05 season and I'm freakishly at home at the Pacific Coliseum. I know all the arena staff, all the little shortcuts, all the tricks. And I love feel of the building -- the Giants have a hockey-savvy, blue-collar fan base that appreciates hustle and isn't shy about it. (The joint should be rocking on Milan Lucic Night.)
The problem for me in all of this is that I'm not ready to walk and I'll have to go in a wheelchair and a motorized one to boot. (I'm on restricted movement since ripping out some stitches on Saturday.) I wonder what people will think. To me, the motorized chair doesn't fit, since I'm feeling the best I've felt since November, when we were just dealing with cancer. (Remember when we just had cancer? Just a Solitary Plasmacytoma tumour in the T-2 vertebrae? That was cool. Now we've got these seven surgeries on the back to recover from.)
I know that's my problem, I know that's in my head. I know that's my stigma. I hate that that is the way I feel, but, to quote a famous Canadian, it is what it is.
I went to a Giants' game on a walker earlier this season and it was the same way. The Giants' staff are good, good folk, and, for what it's worth, they went out of their way to make me feel better about it. I told play-by-play man Dan Elliott (shameless name drop), who's a longtime buddy of mine and slopitch teammate (more shamelessness) that I didn't feel too stable and was a tad wobbly, and he looked me in the eye and said, "Nothing bad will happen to you in our pressbox. Nothing, I tell you."Sure enough, he assigned an intern to look in on me every five minutes or so, and then checked in himself during intermissions. (Jumbo, flat out, is one of the best people I know.)
Intermission host Brook Ward (shameless name drop), too, was very kind. I complained about the walker, and he said, "I'm sure I'd feel the same way, but you're the only guy here who really sees the walker. We're just happy that you made it out."
As Sports Talk listeners can attest, that's one of the more eloquent speeches that the Brookster has ever uttered. And one of the shortest. (Like it was going to mushy all the way through. Get over it, Brook.)
It's funny how being this sick for this long plays with your head. I have massive guilt about how this has affected Carol-Ann. My Cancer Coach Bif Naked (yet another shameless name drop) says that it's quite normal -- patient guilt, she calls it.
Carol-Ann told me recently that her field hockey playoffs were coming up and her team might be short players, and then asked who I might want to come hang out with me when she was away playing. I had completely forgotten that her league had re-started when the weather started to get better. I felt like a jerk that she had stopped playing and I didn't realize it, because I know how much she loves to run around and get some frustrations out.
Now, Carol-Ann's sharp. Super sharp. And if she wanted to play in those games and take a break from being with me, she would have found a way to do it. It's her decision. I get the logic, but the emotion isn't quite catching on just yet.
To that end, I'm going to see G.F. Strong staff psychologist Dr. Brad Hallam Friday and talk about the things that are troubling me. I have no problem admitting that I'm going to see a psychologist; I gave up trying to be cool long ago. To pretend that this hasn't been as hard on my mind as it has on my body is foolish.
I just hope the guy likes hockey and wants to talk a little about the Giants' game.
I've covered the Giants for the Province (shameless plug for my employer) since the 2004-05 season and I'm freakishly at home at the Pacific Coliseum. I know all the arena staff, all the little shortcuts, all the tricks. And I love feel of the building -- the Giants have a hockey-savvy, blue-collar fan base that appreciates hustle and isn't shy about it. (The joint should be rocking on Milan Lucic Night.)
The problem for me in all of this is that I'm not ready to walk and I'll have to go in a wheelchair and a motorized one to boot. (I'm on restricted movement since ripping out some stitches on Saturday.) I wonder what people will think. To me, the motorized chair doesn't fit, since I'm feeling the best I've felt since November, when we were just dealing with cancer. (Remember when we just had cancer? Just a Solitary Plasmacytoma tumour in the T-2 vertebrae? That was cool. Now we've got these seven surgeries on the back to recover from.)
I know that's my problem, I know that's in my head. I know that's my stigma. I hate that that is the way I feel, but, to quote a famous Canadian, it is what it is.
I went to a Giants' game on a walker earlier this season and it was the same way. The Giants' staff are good, good folk, and, for what it's worth, they went out of their way to make me feel better about it. I told play-by-play man Dan Elliott (shameless name drop), who's a longtime buddy of mine and slopitch teammate (more shamelessness) that I didn't feel too stable and was a tad wobbly, and he looked me in the eye and said, "Nothing bad will happen to you in our pressbox. Nothing, I tell you."Sure enough, he assigned an intern to look in on me every five minutes or so, and then checked in himself during intermissions. (Jumbo, flat out, is one of the best people I know.)
Intermission host Brook Ward (shameless name drop), too, was very kind. I complained about the walker, and he said, "I'm sure I'd feel the same way, but you're the only guy here who really sees the walker. We're just happy that you made it out."
As Sports Talk listeners can attest, that's one of the more eloquent speeches that the Brookster has ever uttered. And one of the shortest. (Like it was going to mushy all the way through. Get over it, Brook.)
It's funny how being this sick for this long plays with your head. I have massive guilt about how this has affected Carol-Ann. My Cancer Coach Bif Naked (yet another shameless name drop) says that it's quite normal -- patient guilt, she calls it.
Carol-Ann told me recently that her field hockey playoffs were coming up and her team might be short players, and then asked who I might want to come hang out with me when she was away playing. I had completely forgotten that her league had re-started when the weather started to get better. I felt like a jerk that she had stopped playing and I didn't realize it, because I know how much she loves to run around and get some frustrations out.
Now, Carol-Ann's sharp. Super sharp. And if she wanted to play in those games and take a break from being with me, she would have found a way to do it. It's her decision. I get the logic, but the emotion isn't quite catching on just yet.
To that end, I'm going to see G.F. Strong staff psychologist Dr. Brad Hallam Friday and talk about the things that are troubling me. I have no problem admitting that I'm going to see a psychologist; I gave up trying to be cool long ago. To pretend that this hasn't been as hard on my mind as it has on my body is foolish.
I just hope the guy likes hockey and wants to talk a little about the Giants' game.
Monday, February 21, 2011
I've got the power; new stitches prompt switch to motorized wheelchair for short period
The bad news is that the new stitches in my back has led to our surgeon, Dr. Robert Lee, limiting my arm movements for the next two weeks.
The really bad news, at least for the people at G.F. Strong and the general public around King Ed and Laurel in Vancouver, is that they've given me a power wheelchair.
Oh. Mercy. Think of the havoc I can cause with a motor and wheels?
I'm feeling strong and confident, so I think I'll be back doing a lot of walking through the next couple of weeks, but the power chair does have a certain video game appeal to it, since it's controlled by a joystick.
As for the wound, it's a little antsy at times, but it's not too surprising, considering the skin there has been through 20 radiation sessions to battle back my Solitary Plasmacytoma tumour and the seven surgeries. It does seem to be getting more under control after Dr. Lee's on-the-fly stitch session on Saturday.
The really bad news, at least for the people at G.F. Strong and the general public around King Ed and Laurel in Vancouver, is that they've given me a power wheelchair.
Oh. Mercy. Think of the havoc I can cause with a motor and wheels?
I'm feeling strong and confident, so I think I'll be back doing a lot of walking through the next couple of weeks, but the power chair does have a certain video game appeal to it, since it's controlled by a joystick.
As for the wound, it's a little antsy at times, but it's not too surprising, considering the skin there has been through 20 radiation sessions to battle back my Solitary Plasmacytoma tumour and the seven surgeries. It does seem to be getting more under control after Dr. Lee's on-the-fly stitch session on Saturday.
Sunday, February 20, 2011
He'll be coming down the mountain to do my stitches; spine surgeon amazes yet again
How will we ever thank Dr. Robert Lee?
Seriously. We could use the ideas.
There have been a bus load of people who have been integral to Carol-Ann and I so far surviving this ordeal, one that began with a tumour being found in my T-2 vertebrae in October and has included seven surgeries, two of which featuring rods and screws being placed in my back to stabilize it. Lee, a spine surgeon at VGH, has been particularly paramount.
The good doctor, who got into a battle at VGH to get my biopsy done in a timely manner after it was initially postponed and was keeping tabs on me while visiting his family in England in early December with such fervour that he telephoned Carol-Ann at the hospital to make a couple of suggestions about my care, added to his list of good deeds on Saturday when he had us meet him at VGH to sew up a wound on my back after I had torn out some stitches rehabbing at GF Strong.
The catch? He was on his day off, skiing at Whistler, and hustled down the mountain and back to the hospital to meet us.
(Worried about the new stitches, Dr. Lee has put restrictions on my mobility over the next two weeks, including keeping me from propelling my own wheelchair. I'm not pleased about it, but I'll make it through. For what it's worth, I haven't felt this strong physically or mentally since November.)
The very fact that we even had the surgeon's cell number has stunned nurses both at VGH and GF.
You read the papers (particularly the Province...shameless sucking up to my employer) and you watch the nightly news on TV and there are routinely stories about how messed the B.C. medical system is. Sorry. It's like nothing we've experienced. People have gone out their way, done more than their share, to make these last few months a little less nightmarish. Dr. Lee, of course, has been at the top of that list.
If you have any clue how we can show our appreciation, drop me a line.
Seriously. We could use the ideas.
There have been a bus load of people who have been integral to Carol-Ann and I so far surviving this ordeal, one that began with a tumour being found in my T-2 vertebrae in October and has included seven surgeries, two of which featuring rods and screws being placed in my back to stabilize it. Lee, a spine surgeon at VGH, has been particularly paramount.
The good doctor, who got into a battle at VGH to get my biopsy done in a timely manner after it was initially postponed and was keeping tabs on me while visiting his family in England in early December with such fervour that he telephoned Carol-Ann at the hospital to make a couple of suggestions about my care, added to his list of good deeds on Saturday when he had us meet him at VGH to sew up a wound on my back after I had torn out some stitches rehabbing at GF Strong.
The catch? He was on his day off, skiing at Whistler, and hustled down the mountain and back to the hospital to meet us.
(Worried about the new stitches, Dr. Lee has put restrictions on my mobility over the next two weeks, including keeping me from propelling my own wheelchair. I'm not pleased about it, but I'll make it through. For what it's worth, I haven't felt this strong physically or mentally since November.)
The very fact that we even had the surgeon's cell number has stunned nurses both at VGH and GF.
You read the papers (particularly the Province...shameless sucking up to my employer) and you watch the nightly news on TV and there are routinely stories about how messed the B.C. medical system is. Sorry. It's like nothing we've experienced. People have gone out their way, done more than their share, to make these last few months a little less nightmarish. Dr. Lee, of course, has been at the top of that list.
If you have any clue how we can show our appreciation, drop me a line.
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