Sunday, June 26, 2011

Music, perceptions and Dennis Green famous quotes and their ties to cancer rehab

When you get cancer, you inevitably hear about how it "changes your perspective," and "shows who your friends really are," and things like that.
My take? Malarkey. Complete malarkey.
I'm the same person I was when I was diagnosed with a Solitary Plasmacytoma tumour in my T-2 vertebrae back in October. No better, no worse. No lights suddenly went on.
As for my family and friends, people have acted the way I expected them to act.
(Famous Dennis Green blow-up about the Bears being "who we thought there were," goes here.)
Carol-Ann has brave and graceful and a steadfast advocate for me. She's been everything she could be, and, considering who she is and how she was brought up, she's been everything I figured she would be.
The majority of the other people who I thought would be around all the time, who would call continually and email frequently, have done exactly that. The people who I figured would handle this at arm's length, due to fears of their own mortality or cancer in general or whatever else, have reacted that way.
Maybe one guy hasn't acted as expected, has been a little absent. No matter. His loss.
Carol-Ann and I have been blessed to receive the support we've received. We have amazing family and friends. And we're well aware that there's no way we'd get to this point without the assistance.
There have been things that have changed. This is going to sound goofy (that could be the subtitle for this blog...lets be honest) but I feel more of a connection to music than before. Certain songs at certain times have become rallying points for me.
(In interest of full disclosure -- which remains one of my favourite phrases -- my good buddy Arnie Sison maintains that I have the musical taste of a 12-year-old girl. I contend I have the musical taste of a really hip 12-year-old girl.)
Michael Buble's Home helped get me focussed during my last days at VGH and the early part of my third and final stint at GF Strong. I know it has nothing do with anything I've gone through, but the chorus, the idea of finally going home, played a role in me getting my head re-set when my thinking went awry.
(The line about feeling, "like I'm living someone else life," did connect for me, for what it's worth.)
Of late, it hasn't be a song as much as it's been a singer, Nicci Martinez, one of the contestants from The Voice. (In interest of full disclosure, I watch a lot of trendy trashy TV. I'd like to play like I'm high falutin, but I'm much more Dog The Bounty Hunter than PBS.)
Martinez, who covered The Dog Days Are Over last show, is this scrappy, little battler. She doesn't sing a song as much as she grabs around the scruff of the neck and takes it where she wants it to go.
I get that. I'm far from little, but I feel like a battler.
(I asked Carol-Ann today if she thought I was a battler and she agreed. I asked her if I was before cancer came around, and she said, "only when you were mad, and it didn't always make sense.")
I had the tunes blaring today when I went for my walk -- I did one kilometre for the first time, albeit with a walker.
Part of me is getting better. Part of me is staying the same.

Tuesday, June 21, 2011

My little marathon: this afternoon marks my first steps without any sort of device

It was only a few steps, but it was my own little marathon for the time being.
I walked 10 feet today without a walker, in the basement of our home and under the supervision of our physio Paula Peres. It's a terribly short distance, I know -- but it's my first steps solely on my own since October. That was just before I was diagnosed with a Solitary Plasmacytoma tumour in my T-2 vertebrae and long ahead of the eight back surgeries Carol-Ann and I have had to endure.
It's a terribly short distance, I know -- but there's been some suggestion, albeit usually worst-case scenario providing, that I'd never get off a walker.
It's a terribly short distance, I know -- but this is the happiest I've been since one of my dozen or so GF Strong physios, Hilary Cole, sucked me in to standing on my own without holding onto anything the first time in February. Hilary, in midst of my second of three stints at GF, got me engulfed in some serious conversation and all of the sudden I was up and on my feet.
It's the happiest I've been since I could move my left leg for my VGH physio Anne after surgery No. 7 back in February. That operation, which replaced my original four rods and screws in my back with six rods and screws, was a result of my left leg coming to a complete halt in my first go-round at GF. In the days leading up to the operation, my left leg wouldn't fire at all, no matter what I asked it to do. The morning after surgery, Anne came in, asked me to lift my leg off the bed, and I did it, and then I was able to keep it up when she pushed against it.
Maybe the coolest thing of all is that I'm this excited. This rehab thing is a grind, and it's so easy to get disappointed. It can be easier to look at what I've lost rather than what I've regained, and everyone I've talked to says that it's as hard mentally and emotionally as it is physically.
I'm sore and stiff every morning. We've tried to rectify that by going to Canada Games pool and splish splashing for 30 minutes to an hour. That tends to work. I see Paula twice a week, and she might work me harder than anybody I've ever had. (Apologies to various people.) I'm walking around the neighbourhood with my walker, and I'm doing day-to-day stuff like cooking and a laundry, and that takes a toll on me.
I'm also back at work, albeit for four hours a week right now. I had my stories in the paper last Friday. That was a decent milestone for me, but I think Thursday, when I'm slated to attend my first press conference since returning by covering Vancouver Giants' gathering, might be a bigger deal for me emotionally.
Thursday's also my next visit with Paula, so it could be quite a day, especially if this afternoon is any consideration.

Monday, June 13, 2011

Just when you thought it was safe to feel sorry for yourself, something like this comes along

I've never been an overly spiritual person, but I've always believed in fate.
This little squabble with cancer and back surgeries has only reiterated that.
I haven't had a lot of jump the past few days. My energy is low. At first, I tied it to battling a cold. Now, I'm thinking that I'm just worn out from the rehab -- I've made huge gains, but there's still much to go and it can be hard at times to rationalize that.
I had real trouble getting going this morning, but, with the help of cohort Susie Culp, I dragged myself to the pool and did my 45 minutes of walking back and forth, back and forth.
I came home, starting paring down my FOLLOWING list on Twitter like I routinely do and came across this Derek K. Miller guy. I remembered that he had cancer and was blogging about it, but I hadn't checked in on his blog in awhile.
I did, right here.
It quickly made me feel less sorry about my physical condition, although I'm jealous about the writing and the ideals.
Give it read. It certainly will make you think.

Thursday, June 9, 2011

Doctor says I can have the write stuff; allows me to go back to work, albeit on a limited basis

Got some good news, and some good news. And, for that matter, some more good news.
Haven't read that here before too often, eh?
Kicking off, our GP, Dr. Jennifer Rogerson, agreed this morning (HOT OFF THE PRESS...HOT OFF THE PRESS...I've always wanted to say that...next up, I'll hop in a random cab and tell the driver to "Follow that car!!!") that I can go back to work a few hours a week starting next Monday.
We're talking four hours a week to start, but that's enough for me to do at least one story, and it'll help keep me sane and focused. And Dr. Rogerson says that it will be a good test of my mental and emotional stamina.
Province sports editor Jonathan McDonald has said all along that he wanted to ease me back into working, when ever that was going to happen, so it makes it easier knowing that he's on board with the medical folk. (Shameless plug for my boss. And, seriously, is there any better shameless plug?)
Also on the plus front, I stood on one foot, without holding onto anything,  several times Tuesday. It may seem tiny, but walking, on some level, is a series of one-footed stands, and I hadn't been anywhere close to standing on one foot in some time. I had, in fact, given up even trying for the final few weeks at GF Strong. I didn't have the strength in my hips or my core then.
And, to wrap up our happiness hat trick, my new at-home physio, Paula Peres is a butt kicker and seems to really get me.
I had my first session with her a week ago, and I so wanted to impress her, so wanted to show her that I was going to be good to work with. She put me through some signature assessment tests, and I struggled.
I was hard on myself about it, and she finally looked at me, and said, "Get over yourself." As she pointed out, if I didn't have things to improve on, she wouldn't have been there, taking my money.
"You know that you're paying me for this?" she said, big, goofy smile on her face.
That's one of the hard things with rehab -- it's just as much mental as it is physical. I don't want to be where I'm at, meandering around with a walker, but I need to remember how far I've gotten and how much time I've spent in a hospital bed. I need to remember my Solitary Plasmacytoma tumour and eight back surgeries.
It's tricky. But it's slowly getting better.

Friday, May 27, 2011

Home is where the schedule has to be: slowly getting workable daily schedule together for cancer/back surgery rehab out of our house

We're nine days into Extreme Steve Makeover: Home Edition and I feel like I'm starting to get into a routine.
The plan that we had come together with at GF Strong was for me to stretch and strengthen in the morning, and then go to the pool and maybe take a walk in the afternoon. Today was the first day we managed to pull it off.
In my defence, we had been told by all sorts of people to take it easy the first few days after discharge, Canada Games Pool down the street was booked with a swim meet last weekend and we did have other one-off events cut into things this week. For instance, I needed to go for a driver's rehab session at GF on Thursday, and I was dead-set on hitting the mall on Wednesday to buy Carol-Ann a ring, a memento for us making it through 20 sessions of radiation for a Solitary Plasmacytoma tumour, eight back surgeries and six months in VGH/GF.
With coaching from friends Bif Naked and Susie Culp, I picked out a little Topaz number. (Anybody who thinks that I'm sucking up to my wife by buying her a ring and then talking about it here...you're right.) And as much as it was about making Carol-Ann happy, it was a learning experience: assorted good folks at GF suggested I purchase a wheelchair for longer trips, "like to a mall," and sure enough, I was gutted by the end of the day. (The wheelchair we bought remains a storage cabinet for the time being, as I'm sticking with Walks, my walker.)
Originally, we were going to search through all the stores at Oakridge. Instead, we made it to a pair, and, thanks goodness, there was something very Carol-Ann at that final one.
I didn't have much left by the end of Thursday, either, but that was more mentally draining. The driver's rehab was largely computer generated, looking to test my reaction time with my hands and my feet. We also went over rules of the road and did a few basic strength tests.
The final bill? A tidy $275. (Could have gotten a nice pair of earrings to go with the ring for that.) Next up, I have to report to the Motor Vehicle Branch my spine injury, which in turn makes my current license invalid. I need my GP, Dr. Jennifer Rogerson, to fill out a form explaining my limitations and send it to MVB and then I take a road test set up by GF.
The final bill for that GF test? I think it's $325. (Could have gotten a nice pendant to go with the ring for that.) I pass, I get a license. I fail -- and we've been told that 50 per cent of people with my type of injury do -- and it's lessons ($161 per) and another road test (another $325, I think).
I did pick up a "Learn To Driver Smart -- Your Guide to Driving Safely," from GF, so I'll be studying that in the days leading up to my test.
We'll have to make it part of my routine.

Tuesday, May 24, 2011

Dealing with a "lower body injury" while dealing with cancer/back surgery rehabilitation

I'm rehabbing hurt.
Before I left GF Strong for home late last week, the doctors and physios assessed that I had tendinitis in my knees.
How cool is that? It almost sounds athletic.
The good folks at GF said that the pain was coming from both fatigue from rehab and from poor walking form, due to me landing all too often on locked knees. They tied that to fear of my legs buckling, and, I hate to admit it, but that's more than fair.
Ice and rest is the treatment and, after my discharge Thursday night, I tried to take it easy for a few days. We've hired a physio, Paula, who will come to the house to bust my behind, but she suggested that I spend a week or so getting adjusted to being home before I get back to a regular workout routine.
Much of my first few days at home was spent hanging out with Charlie, the 18-year-old daughter of Carol-Ann's brother Chuck. Charlie, who lives in North Carolina, is one of my favourite people on the planet. She's scrappy and fun. And she's brave as can be -- there was all sorts of family stuff going on right when Carol-Ann and I were getting married, and Charlie, then 15, came up here all on her own for the ceremony. That was a big, big deal for Carol-Ann, and I'll be forever indebted to Charlie for that. (Read: I'll bail her out of whatever trouble she might get in and EVENTUALLY let her parents know about it.)
The timing of my discharge couldn't have been more perfect because of her arrival.
Charlie left for home today and Carol-Ann went back to work, meaning that I got to spend my first full day at home. I had hoped to go to Canada Games Pool to do some laps, but chickened out. I did get in some stretches and strengthening exercises, and me and my new best friend Walks (pictured above...a little something we purchased prior to departing GF) took a walk around the block.
It's scary. Stretching and strengthening at GF is generally done on raised mats; I did it on the floor at home today, and we had a couple of limited sessions at GF about getting up off the floor.
But I want to be known as a battler, and I want to get better and the only way I can do that is going outside my comfort zone.
For what it's worth, my knees are feeling better. I shouldn't have to ice them too much tonight.

Wednesday, May 18, 2011

There's no place like home: Cancer, back surgery rehab moves to our house come May 20

I'm coming home. For good. Finally.
The fine folks here at GF Strong Rehab have all agreed that I can vamoose (good word) on Friday, May 20. I have been home on weekends the past month or so, but I haven't lived at there full time since late November. I haven't been on the main floor or the upstairs portion of our three-storey house since early October; new hand rails being put in should change that in the coming couple of weeks.
I'm far from back to "normal." (Quotes very much intentional.) I'm still needing a walker to get around. I'm still worn out.
They've worked my butt off here. I've never worked so hard in my life. I've tried things physically (there's a long, fairly steep hill out back that I've rode four times and counting in a wheelchair with much help from rehab assistant Derek) that I wouldn't have tried when I was 20.
Granted, that's an indictment of my past, but can't we all just let me revel a little bit, eh? (Hello...I have CANCER.)
The plan is that I won't immediately go back to work at the Province, but instead continue rehabbing every day for the first few weeks at least. We're going to hire a physiotherapist one or two days a week to make sure that I'm staying on track with form and function.
Erin, my occupational therapist here, and I have worked out a daily schedule that involves an hour of stationary bike riding, stretching and strengthening in the morning, cabbing to Canada Games pool for an hour water walking in the afternoon and an hour walk in the afternoon to pick up fresh veggies for dinner. (Yes, Erin has me on veggies. Next up, she'll create world peace. Then, she'll make Vancouver sports fans appreciate Roberto Luongo.)
I look at the schedule and wonder if it's not too ambitious, especially with daily chores around the house thrown in. But I must get better. There is no other option.
Like I've said before, I could be smarter and fitter on May 30, 2011 than I was on May 30, 2010, and that's after a bout with Solitary Plasmacytoma and eight surgeries on my back, including two separate ones to put in rods and screws to stabalize my spine.
As far as coming home, I'm most excited about spending more time with Carol-Ann and taking some of the stress of house up-keep off her shoulders. She's been busting her ass between work at Earl's corporate office (shameless plug for my wife's employer, who continues to be marvelous to us) and being at GF Strong every day and worrying about the house; she's looked so tired and worn out some days, and I have to admit that I've felt unbearably guilty at times. (I know that Carol-Ann's a sharp cookie and is making decisions that she wants to make...I'm just saying that I've felt guilty. Get off me...I have CANCER.)
Another plus for Carol-Ann and for me, as much as I hate to admit it, is that the family cat, Figaro, gets to come home after her extended stay with Carol-Ann's parents, Ron and Verna. I wasn't a cat person before Carol-Ann plopped Figaro into my life, and I contend that I'm a Figaro person more than a cat person right now. As I've pointed out before, Figaro and I have much in common; we like to lay on the couch walking TV, we don't like people touching our bellies and we both hang on every word Carol-Ann says.
(Full disclosure: there's been no sign cancer being present in my recent blood tests, and my radiation-oncologist, Dr. Jim Morris, says that he doesn't need to see me for the next three months. So, some of my "friends," like Carla McAloney, dispute whether I can play the CANCER card anymore. Frankly, I think that's just mean.)
I'm not sure what the next few days here at GF has in store for me. But I definitely want to get a little more momentum going towards my impending discharge.