To quote Jim Ross, and who better to steal a sentence from than a legendary WWE announcer, business is about to pick up.
Carol-Ann and I are spending the weekend in Whistler. It's our first vacation since this whole cancer/back surgery thing bulldogged its way into our lives back in October. (NOTE TO BAD GUYS: Be wary of any skulduggery at our home, since we have a full SWAT team in place.)
We slept in today and then meandered around the village. I'm back at the room resting; Carol-Ann has a friend up here, so she's hanging with her, getting into no good, no doubt.
She's finally over her bout of laryngitis and starting to feel like herself again. This whole mess has beaten her up physically, and not surprisingly, her body shut down for a time.
It's been an interesting week. I'm starting to spend less and less time using the walker to get around. At the house, I'm going freestyle for hours on end. Out and about, I'm using Evander, my cane, more frequency.
I Evandered it around GF Strong on Thursday, during my visit to see Dr. Brad Hallam, our psychologist. Dr. Hallam seemed to be pretty pleased with how I'm dealing with my guilt and frustration and how I botched my driver's exam. I have a great faith in him; it's always good for me to check in with him to see how I'm doing. To think that this hasn't messed with my emotions and my mind as much as my body is foolish.
I got a chance during the stop in with several of the physios and rehab assistants who I had worked with during my two-plus months there, and the response was inspiring.
Derek was a rehab assistant during my final of three stay at the Vancouver physical rehab clinic. I Evandered it into the spine gym and he immediately gave me, "Look at you...look at you!!!"
Derek's a straight forward dude, and maybe the straightest of the straight forward. He's not a cheap compliment guy. He's a "If you're 10 minutes early for a session with him then you're five minutes late," type.
You get the idea.
He had always been positive about my prospects and I reminded him of that, telling him that he was one of the people at GF who told me that I was going to be able to walk again.
His response? "It doesn't make it any less exciting to see it, does it?"
Pretty cool.
After that, I had a session with our at-home physio, Paula Peres, and we Evandered it six blocks. That's the farthest I've gone so far.
The down news, in all of this, is that my body is continuing to break down a little. Paula thinks I've got a strained right hamstring, and has me icing it a few times a day. My back is also a little achy. It's logical, since I'm doing more and more every day after being largely sedentary for six months.
Showing posts with label GF Strong. Show all posts
Showing posts with label GF Strong. Show all posts
Saturday, August 13, 2011
Friday, July 1, 2011
Doing the Kane Cane; cancer rehab improves enough to move from walker to walking stick
The good news is that my physio has cleared me to start using a cane for walking. The best news is that I've already got a name for it -- Evander.
Evander Kane just happens to be one of my all-time favourite athletes. He might be the most competitive person I've ever met. My favourite memory of him dates back to him being a 15-year-old call-up with the Vancouver Giants during their 2007 Memorial Cup run. In practice, he took a hack on the hands from Brendan Mikkelson, then a 19-year-old defenceman who had already signed a pro contract with the Anaheim Ducks. Kane said something to him, gave him a stiff right to the mouth, and skated away. Mikkelson shrugged and went the other direction.
It's not the kind of thing that wins you favour with your teammates. Evander knows that. It definitely went against your "respect your elders" code, but it gave an idea that Kane wanted what he wanted and wasn't afraid to upset people to get it. It's something I could appreciate.
Off the ice, he's always been very good to me and he was one of the first athletes I've covered to call me after I got the cancer diagnosis last October.
We're actually supposed to get together over the next few weeks, and hopefully I can introduce Evander Kane to Evander Cane.
My physio, Paula Peres, had me up on the cane, instead of the walker, last Tuesday, and I went from the laundry room in our basement, through the back yard, to the end of the driveway. She says that I can use it on a limited basis for the next while, as long as Carol-Ann is around.
I've only been out of GF Strong for about a month, so I think it's decent progress, at the very least. Paula says that she's pleased, too.
This rehab thing is still hard, though. I wake up sore every morning and it takes me awhile to feel even somewhat human. I don't know if it's the six rods and who gknows how many screws in my back, but it might be that. And emotionally I feel beat up at times; I cried much of Thursday, frustrated about how I was feeling and how tired I was and how worn out Carol-Ann is, from having to do so much more around the house.
Carol-Ann has been an angel, though, like always. She's keeping me together a lot of days, helping me focus on how far I've come rather than how far I have to go.
My spirits are better today. I had a good session at the pool (we're going four or five times a week...just walking in the shallow end right now) and felt like I had some jump afterwards.
Maybe a little work with my new friend Evander will work wonders for my psyche, too.
Evander Kane just happens to be one of my all-time favourite athletes. He might be the most competitive person I've ever met. My favourite memory of him dates back to him being a 15-year-old call-up with the Vancouver Giants during their 2007 Memorial Cup run. In practice, he took a hack on the hands from Brendan Mikkelson, then a 19-year-old defenceman who had already signed a pro contract with the Anaheim Ducks. Kane said something to him, gave him a stiff right to the mouth, and skated away. Mikkelson shrugged and went the other direction.
It's not the kind of thing that wins you favour with your teammates. Evander knows that. It definitely went against your "respect your elders" code, but it gave an idea that Kane wanted what he wanted and wasn't afraid to upset people to get it. It's something I could appreciate.
Off the ice, he's always been very good to me and he was one of the first athletes I've covered to call me after I got the cancer diagnosis last October.
We're actually supposed to get together over the next few weeks, and hopefully I can introduce Evander Kane to Evander Cane.
My physio, Paula Peres, had me up on the cane, instead of the walker, last Tuesday, and I went from the laundry room in our basement, through the back yard, to the end of the driveway. She says that I can use it on a limited basis for the next while, as long as Carol-Ann is around.
I've only been out of GF Strong for about a month, so I think it's decent progress, at the very least. Paula says that she's pleased, too.
This rehab thing is still hard, though. I wake up sore every morning and it takes me awhile to feel even somewhat human. I don't know if it's the six rods and who gknows how many screws in my back, but it might be that. And emotionally I feel beat up at times; I cried much of Thursday, frustrated about how I was feeling and how tired I was and how worn out Carol-Ann is, from having to do so much more around the house.
Carol-Ann has been an angel, though, like always. She's keeping me together a lot of days, helping me focus on how far I've come rather than how far I have to go.
My spirits are better today. I had a good session at the pool (we're going four or five times a week...just walking in the shallow end right now) and felt like I had some jump afterwards.
Maybe a little work with my new friend Evander will work wonders for my psyche, too.
Tuesday, June 21, 2011
My little marathon: this afternoon marks my first steps without any sort of device
It was only a few steps, but it was my own little marathon for the time being.
I walked 10 feet today without a walker, in the basement of our home and under the supervision of our physio Paula Peres. It's a terribly short distance, I know -- but it's my first steps solely on my own since October. That was just before I was diagnosed with a Solitary Plasmacytoma tumour in my T-2 vertebrae and long ahead of the eight back surgeries Carol-Ann and I have had to endure.
It's a terribly short distance, I know -- but there's been some suggestion, albeit usually worst-case scenario providing, that I'd never get off a walker.
It's a terribly short distance, I know -- but this is the happiest I've been since one of my dozen or so GF Strong physios, Hilary Cole, sucked me in to standing on my own without holding onto anything the first time in February. Hilary, in midst of my second of three stints at GF, got me engulfed in some serious conversation and all of the sudden I was up and on my feet.
It's the happiest I've been since I could move my left leg for my VGH physio Anne after surgery No. 7 back in February. That operation, which replaced my original four rods and screws in my back with six rods and screws, was a result of my left leg coming to a complete halt in my first go-round at GF. In the days leading up to the operation, my left leg wouldn't fire at all, no matter what I asked it to do. The morning after surgery, Anne came in, asked me to lift my leg off the bed, and I did it, and then I was able to keep it up when she pushed against it.
Maybe the coolest thing of all is that I'm this excited. This rehab thing is a grind, and it's so easy to get disappointed. It can be easier to look at what I've lost rather than what I've regained, and everyone I've talked to says that it's as hard mentally and emotionally as it is physically.
I'm sore and stiff every morning. We've tried to rectify that by going to Canada Games pool and splish splashing for 30 minutes to an hour. That tends to work. I see Paula twice a week, and she might work me harder than anybody I've ever had. (Apologies to various people.) I'm walking around the neighbourhood with my walker, and I'm doing day-to-day stuff like cooking and a laundry, and that takes a toll on me.
I'm also back at work, albeit for four hours a week right now. I had my stories in the paper last Friday. That was a decent milestone for me, but I think Thursday, when I'm slated to attend my first press conference since returning by covering Vancouver Giants' gathering, might be a bigger deal for me emotionally.
Thursday's also my next visit with Paula, so it could be quite a day, especially if this afternoon is any consideration.
I walked 10 feet today without a walker, in the basement of our home and under the supervision of our physio Paula Peres. It's a terribly short distance, I know -- but it's my first steps solely on my own since October. That was just before I was diagnosed with a Solitary Plasmacytoma tumour in my T-2 vertebrae and long ahead of the eight back surgeries Carol-Ann and I have had to endure.
It's a terribly short distance, I know -- but there's been some suggestion, albeit usually worst-case scenario providing, that I'd never get off a walker.
It's a terribly short distance, I know -- but this is the happiest I've been since one of my dozen or so GF Strong physios, Hilary Cole, sucked me in to standing on my own without holding onto anything the first time in February. Hilary, in midst of my second of three stints at GF, got me engulfed in some serious conversation and all of the sudden I was up and on my feet.
It's the happiest I've been since I could move my left leg for my VGH physio Anne after surgery No. 7 back in February. That operation, which replaced my original four rods and screws in my back with six rods and screws, was a result of my left leg coming to a complete halt in my first go-round at GF. In the days leading up to the operation, my left leg wouldn't fire at all, no matter what I asked it to do. The morning after surgery, Anne came in, asked me to lift my leg off the bed, and I did it, and then I was able to keep it up when she pushed against it.
Maybe the coolest thing of all is that I'm this excited. This rehab thing is a grind, and it's so easy to get disappointed. It can be easier to look at what I've lost rather than what I've regained, and everyone I've talked to says that it's as hard mentally and emotionally as it is physically.
I'm sore and stiff every morning. We've tried to rectify that by going to Canada Games pool and splish splashing for 30 minutes to an hour. That tends to work. I see Paula twice a week, and she might work me harder than anybody I've ever had. (Apologies to various people.) I'm walking around the neighbourhood with my walker, and I'm doing day-to-day stuff like cooking and a laundry, and that takes a toll on me.
I'm also back at work, albeit for four hours a week right now. I had my stories in the paper last Friday. That was a decent milestone for me, but I think Thursday, when I'm slated to attend my first press conference since returning by covering Vancouver Giants' gathering, might be a bigger deal for me emotionally.
Thursday's also my next visit with Paula, so it could be quite a day, especially if this afternoon is any consideration.
Thursday, June 9, 2011
Doctor says I can have the write stuff; allows me to go back to work, albeit on a limited basis
Got some good news, and some good news. And, for that matter, some more good news.
Haven't read that here before too often, eh?
Kicking off, our GP, Dr. Jennifer Rogerson, agreed this morning (HOT OFF THE PRESS...HOT OFF THE PRESS...I've always wanted to say that...next up, I'll hop in a random cab and tell the driver to "Follow that car!!!") that I can go back to work a few hours a week starting next Monday.
We're talking four hours a week to start, but that's enough for me to do at least one story, and it'll help keep me sane and focused. And Dr. Rogerson says that it will be a good test of my mental and emotional stamina.
Province sports editor Jonathan McDonald has said all along that he wanted to ease me back into working, when ever that was going to happen, so it makes it easier knowing that he's on board with the medical folk. (Shameless plug for my boss. And, seriously, is there any better shameless plug?)
Also on the plus front, I stood on one foot, without holding onto anything, several times Tuesday. It may seem tiny, but walking, on some level, is a series of one-footed stands, and I hadn't been anywhere close to standing on one foot in some time. I had, in fact, given up even trying for the final few weeks at GF Strong. I didn't have the strength in my hips or my core then.
And, to wrap up our happiness hat trick, my new at-home physio, Paula Peres is a butt kicker and seems to really get me.
I had my first session with her a week ago, and I so wanted to impress her, so wanted to show her that I was going to be good to work with. She put me through some signature assessment tests, and I struggled.
I was hard on myself about it, and she finally looked at me, and said, "Get over yourself." As she pointed out, if I didn't have things to improve on, she wouldn't have been there, taking my money.
"You know that you're paying me for this?" she said, big, goofy smile on her face.
That's one of the hard things with rehab -- it's just as much mental as it is physical. I don't want to be where I'm at, meandering around with a walker, but I need to remember how far I've gotten and how much time I've spent in a hospital bed. I need to remember my Solitary Plasmacytoma tumour and eight back surgeries.
It's tricky. But it's slowly getting better.
Haven't read that here before too often, eh?
Kicking off, our GP, Dr. Jennifer Rogerson, agreed this morning (HOT OFF THE PRESS...HOT OFF THE PRESS...I've always wanted to say that...next up, I'll hop in a random cab and tell the driver to "Follow that car!!!") that I can go back to work a few hours a week starting next Monday.
We're talking four hours a week to start, but that's enough for me to do at least one story, and it'll help keep me sane and focused. And Dr. Rogerson says that it will be a good test of my mental and emotional stamina.
Province sports editor Jonathan McDonald has said all along that he wanted to ease me back into working, when ever that was going to happen, so it makes it easier knowing that he's on board with the medical folk. (Shameless plug for my boss. And, seriously, is there any better shameless plug?)
Also on the plus front, I stood on one foot, without holding onto anything, several times Tuesday. It may seem tiny, but walking, on some level, is a series of one-footed stands, and I hadn't been anywhere close to standing on one foot in some time. I had, in fact, given up even trying for the final few weeks at GF Strong. I didn't have the strength in my hips or my core then.
And, to wrap up our happiness hat trick, my new at-home physio, Paula Peres is a butt kicker and seems to really get me.
I had my first session with her a week ago, and I so wanted to impress her, so wanted to show her that I was going to be good to work with. She put me through some signature assessment tests, and I struggled.
I was hard on myself about it, and she finally looked at me, and said, "Get over yourself." As she pointed out, if I didn't have things to improve on, she wouldn't have been there, taking my money.
"You know that you're paying me for this?" she said, big, goofy smile on her face.
That's one of the hard things with rehab -- it's just as much mental as it is physical. I don't want to be where I'm at, meandering around with a walker, but I need to remember how far I've gotten and how much time I've spent in a hospital bed. I need to remember my Solitary Plasmacytoma tumour and eight back surgeries.
It's tricky. But it's slowly getting better.
Friday, May 13, 2011
New railings mean a chance to get back to good old days of time in the kitchen, master bedroom
This blog sat idle for several weeks. Now, it's running a million miles per hour.
I got home earlier tonight for my final weekend pass from GF Strong, and found that the workers Carol-Ann had hired had completed the railings on our stairs leading from the basement to the main floor.
The short version? Tonight, I made it to the main floor, which features the kitchen and master bedroom, for the first time since Oct. 19. That was the day we were admitted to VGH with what turned out to be a Solitary Plasmacytoma tumour in my T-2 vertebrae.
We did get to come home for much of November, but my walking was so wonky that I was confined downstairs. We went under the same premise during my early weekend passes from GF.
The railings on the stairs didn't go all the way to the top before, and there was a worry that I wouldn't make it all the way up.
Needless to say, it was simply spectacular when I did exactly that today. I cried my eyes out, wandering from room to room.
It was a good kind of cry this time, though.
I got home earlier tonight for my final weekend pass from GF Strong, and found that the workers Carol-Ann had hired had completed the railings on our stairs leading from the basement to the main floor.
The short version? Tonight, I made it to the main floor, which features the kitchen and master bedroom, for the first time since Oct. 19. That was the day we were admitted to VGH with what turned out to be a Solitary Plasmacytoma tumour in my T-2 vertebrae.
We did get to come home for much of November, but my walking was so wonky that I was confined downstairs. We went under the same premise during my early weekend passes from GF.
The railings on the stairs didn't go all the way to the top before, and there was a worry that I wouldn't make it all the way up.
Needless to say, it was simply spectacular when I did exactly that today. I cried my eyes out, wandering from room to room.
It was a good kind of cry this time, though.
Thursday, April 28, 2011
Top 10 memories from this wacky rehab from cancer, back surgery and assorted other things
In honour of my improving mobility, the hard-working staff here at G.F. Strong physical rehab and the fact that I've got a morning without any classes, may we present my favourite five memories so far of our little fracas with cancer, back surgeries and infection.
I've purposely tried to cut down on mentions of Carol-Ann, because every entry every time could be focused solely on her, considering how brave she's been and how much she's propped me up and kept me going in the right direction. She doesn't like the attention, for one, and I also want to try to keep some of the things that have happened strictly between my wife and I.
1. THOSE 11 DAYS IN VGH IN OCTOBER
We had a hoot in the week-plus leading up to the diagnosis of a Solitary Plasmacytoma tumour in my T-2 vertebrae.. We had 75 different people visit over that time, and everybody was in good spirits, full of life. Nurses quickly referred to it as the party room, Carol-Ann apologized more than once for the racket we were making.
Carol-Ann and I have to take credit for some of the fun -- Bif Naked (shameless name drop) had prepped us well, saying, "Get ready to console people about your cancer," and we made sure that we had the one-liners rolling off the top of the morning.
There were so many fun things that happened...my grandmother admitting her crush on Jay Janower (shameless name drop) when he came by, Carol-Ann feverishly handing out candies and cookies to random people in the hallways on our final night to cut down how much of the sugary booty we had amassed that she had to take him with us, and Iain MacIntyre (shameless name drop) commenting "There hasn't been a pee that long since the Austin Powers movie," when I went to relieve myself in the bathroom in the room. (My ego and pride quickly disintegrated.)
My favourite moment of all may have been when a young intern from B.C. Cancer came to check on my strength with one of those "Arm tug-of-war" tests. I was still feeling pretty well back then, and was weary of not pushing around any of the nurses when they did those tests. This guy popped me pretty hard the first time, and said, "Yep, been going to the gym."
He had 10 years on me. I had 75, 85 pounds on him. I looked at my dad and he nodded, and the next time I sent the poor kid sliding across the floor, shuffling his feet to keep from tipping over.
Yep, I really am an old 12-year-old sometimes.
2. SURGERY PREP
I hate operations. I loath them. I'm a control freak, and I can't stand having someone else having that kind of say over my body. As well, I'm a worst-case-scenario guy, so I greatly fear being one of those people who die during a "simple" surgery from an oddball complication.
I thought I hated flying. Compared to surgery, flying is like having a big, juicy BBQ'd steak. My hands still ache from the IV lines.
Every surgery, though, meant these intimate little moments for Carol-Ann and I. We'd sit in pre-op downstairs, and I'd cry like crazy, and she'd tell me over and over again how much she loves me and how everything was going to be alright. I'd grunt out: "I will fight for you," and she would nod and smile, and, before too long, they'd be taking me off to the operating room.
There were also one-on-one times with Dr. Robert Lee, our surgeon for six and half of the eight operations that we had. He was always very in tune to my mood and my fears. He knew how much I hate surgery. He knows how it freaks me out.
Before Surgery No. 7, which was the second rods-and-screws back rebuild, he came in to our hospital room to tell me that we had been pushed back a couple of hours. Carol-Ann was off getting a coffee.
After explaining the scheduling snafu, Dr. Lee looked at me, grinned, and said, "Steven...you know I'll take care of you, don't you?"
I nodded. He grinned again. And, sure enough, I'm better than I was when I was thrust into his care.
I don't know I'll ever thank him. No clue. I'm also not sure if anyone -- including Carol-Ann -- understands the bond I feel with Dr. Lee.
3. POOL TIME
In November, when I was living at home and doing radiation treatment, I wanted to do something physical to try to get in some semblance of shape. Finally, I got the OK from the powers that be to try walking in the pool.
I hate the water. (I'm a big wimp. I admit it.) But I knew it would help. Sure enough, we recruited eight people to come down to Canada Games that first time and either get in the water with me or cheer me on from the sidelines.
The support that night was pretty remarkable.
4. THAT CRAZY DR. LEE
Surgery No. 7 took place on a Friday. Afterwards, Dr. Lee told both Carol-Ann and I that he wouldn't see us on Saturday, but he would be in on Sunday. Dr. Lee is amazing...we routinely saw him twice a day, seven days a week.
At about 5 p.m. on Saturday, Carol-Ann got up, put on her coat and was getting ready to go get some takeout for dinner. We were going over what I wanted to eat when Dr. Lee's head popped out behind the corner. He ducked back for cover. Carol-Ann had no clue what was going on. Dr. Lee popped out again, big, cheezy smile. I knew it was on.
Steve: "I have a feeling that Dr. Lee is coming today..."
Carol-Ann: "I know you love your Dr. Lee, but you know what he told us...he's not coming until tomorrow. Don't get all excited."
Steve: "Carol-Ann?"
Carol-Ann: "You know what he said."
Steve: "Fine...you can just go get dinner then."
She turned, headed around the corner, and was absolutely stunned when she came across the grinning Dr. Lee.
He came into the room, did some strength testing, checked the wound, and said that he had decided to take Sunday off instead of Saturday. We would see him again on Monday, according to him.
Sunday, at about 11 a.m., Carol-Ann got up, got her coat on and was heading out for coffees when Dr. Lee's big, grinning mug popped out from around the corner again. He didn't have to do it twice for me to know what my job was.
Steve: "Carol-Ann...I hate to tell you, but I'm getting that Dr. Lee feeling again."
She was having none of it. She told me to stop it, but was concerned enough to turn around to see if she could see any feet under the curtain that just inside the room's doorway. There were none.
Dr. Lee, being Dr. Lee, had been crafty enough to jump into the bathroom. Our nurse that day, Julie, was coming around the corner at that time and he quietly waved her off. It was her second day on the job -- she had no idea who this strange man in our bathroom was, but she was willing to wait a few minutes to figure it out.
I tried to "warn" Carol-Ann, but she wasn't willing to accept my "help." She turned, went to leave, and was stunned AGAIN.
5. OH, WEBER
My Province colleague, Marc Weber (SHAMED name drop), has a way with people apparently. Sitting in pre-op before Surgery No. 2 (the first rods and screws), I was with Carol-Ann and, this time, Bif Naked.
I was facing the door. And I was more than a little surprised when Weber strutted through. Marc`s a tall, strapping lad. Good looking enough to be a doctor, or so I was told. (Thanks Bif.) That is one of the explanation of how he made it into that highly restricted area.
To this day, I haven`t gotten a straight answer on how he made it there.
6. THE FIRST STEPS AFTER SURGERY NO.7
My first trip to GF ended abruptly. My left leg up and quit on me. I couldn`t get it to move. I basically dragged it around behind me.
I went back to VGH and Dr. Lee and he said that he was 75 per cent sure that there was a problem with the initial rods and screws. They had found that one of the rods had broken via an x-ray earlier. During the surgery, they learned that the other main one was bent.
They try to get you up on your feet the day after surgery, in a bid, basically, to get your body restarted.
That first stand, when the leg didn`t fail, was major for me, because I wasn`t sure until then if the leg would work.
7. END AROUND
I have weak, wonky hips. (That wonky is for former Vancouver Giants trainer Cory Cameron, who hates that I use the word wonky to explain medical conditions.) I have a big, burly buttocks.
In a bid to show me what I should be doing with my hips when walking, physios have routine had to grab my booty. Anne, my regular physio at VGH, is such a sweetie that she worried about how I was taking it.
I told her that not only was I OK with her grabbing my butt, Carol-Ann was good with it, too.
8. BLOCK PARTY
My second stint at VGH, which began in late November after my T-2 collapsed, was much different than my first. I was much sicker. Easily my least favourite memory was Carol-Ann relaying to me that one of the doctors told her after Surgery No. 3 -- The First Infection Washout -- that the next 24 to 48 hours were going to be crucial in my survival. The sheer fear on her face telling that story is something that broke my heart.
After having a huge, blowout party for our first stay, we toned things down for this time. Carol-Ann wanted a list of 10 or so people who could visit, and everybody else was off limits.
I quickly scribbled down some names of people who I thought would come. I forgot Iain MacIntyre (shameless name drop). It was middle of the hockey season...I never reckoned he`d have time.
He showed, but before I could say anything to Carol-Ann, she cut him off at the room`s doorway, physically blocked him out and started back-stepping him into the hallway. I eventually got her calmed down and got him back into room. It wasn`t funny at the time...it is now. Except for maybe Iain.
9. BRETT AND MICHELLE'S WEDDING RECEPTION
Brett plays short on our slopitch team, Michelle pitches. They eloped over the summer and had their reception in October. We got a hall pass from VGH to go.
They had a quiz to decide table order for eating and one of the questions was: "Make up a word using the letters from BRETT and MICHELLE and describe why it best suits their relationship."
The answer from our table of ball teammates: "It doesn't matter what the word is -- Ewen has cancer. We should eat first."
10. BLOGGED DOWN
One of the doctors here at GF is a stylish Russian gentleman, Dr. K. He surprised me when he knew the music of Bif Naked and made a point of introducing himself to her. I wrote about it, right down to how well put together the guy is.
The next day he came up to me and thanked me for noticing his shoes. I didn`t see him as a Bif Naked listener, and I really didn`t see him as a Steve Ewen reader.
I've purposely tried to cut down on mentions of Carol-Ann, because every entry every time could be focused solely on her, considering how brave she's been and how much she's propped me up and kept me going in the right direction. She doesn't like the attention, for one, and I also want to try to keep some of the things that have happened strictly between my wife and I.
1. THOSE 11 DAYS IN VGH IN OCTOBER
We had a hoot in the week-plus leading up to the diagnosis of a Solitary Plasmacytoma tumour in my T-2 vertebrae.. We had 75 different people visit over that time, and everybody was in good spirits, full of life. Nurses quickly referred to it as the party room, Carol-Ann apologized more than once for the racket we were making.
Carol-Ann and I have to take credit for some of the fun -- Bif Naked (shameless name drop) had prepped us well, saying, "Get ready to console people about your cancer," and we made sure that we had the one-liners rolling off the top of the morning.
There were so many fun things that happened...my grandmother admitting her crush on Jay Janower (shameless name drop) when he came by, Carol-Ann feverishly handing out candies and cookies to random people in the hallways on our final night to cut down how much of the sugary booty we had amassed that she had to take him with us, and Iain MacIntyre (shameless name drop) commenting "There hasn't been a pee that long since the Austin Powers movie," when I went to relieve myself in the bathroom in the room. (My ego and pride quickly disintegrated.)
My favourite moment of all may have been when a young intern from B.C. Cancer came to check on my strength with one of those "Arm tug-of-war" tests. I was still feeling pretty well back then, and was weary of not pushing around any of the nurses when they did those tests. This guy popped me pretty hard the first time, and said, "Yep, been going to the gym."
He had 10 years on me. I had 75, 85 pounds on him. I looked at my dad and he nodded, and the next time I sent the poor kid sliding across the floor, shuffling his feet to keep from tipping over.
Yep, I really am an old 12-year-old sometimes.
2. SURGERY PREP
I hate operations. I loath them. I'm a control freak, and I can't stand having someone else having that kind of say over my body. As well, I'm a worst-case-scenario guy, so I greatly fear being one of those people who die during a "simple" surgery from an oddball complication.
I thought I hated flying. Compared to surgery, flying is like having a big, juicy BBQ'd steak. My hands still ache from the IV lines.
Every surgery, though, meant these intimate little moments for Carol-Ann and I. We'd sit in pre-op downstairs, and I'd cry like crazy, and she'd tell me over and over again how much she loves me and how everything was going to be alright. I'd grunt out: "I will fight for you," and she would nod and smile, and, before too long, they'd be taking me off to the operating room.
There were also one-on-one times with Dr. Robert Lee, our surgeon for six and half of the eight operations that we had. He was always very in tune to my mood and my fears. He knew how much I hate surgery. He knows how it freaks me out.
Before Surgery No. 7, which was the second rods-and-screws back rebuild, he came in to our hospital room to tell me that we had been pushed back a couple of hours. Carol-Ann was off getting a coffee.
After explaining the scheduling snafu, Dr. Lee looked at me, grinned, and said, "Steven...you know I'll take care of you, don't you?"
I nodded. He grinned again. And, sure enough, I'm better than I was when I was thrust into his care.
I don't know I'll ever thank him. No clue. I'm also not sure if anyone -- including Carol-Ann -- understands the bond I feel with Dr. Lee.
3. POOL TIME
In November, when I was living at home and doing radiation treatment, I wanted to do something physical to try to get in some semblance of shape. Finally, I got the OK from the powers that be to try walking in the pool.
I hate the water. (I'm a big wimp. I admit it.) But I knew it would help. Sure enough, we recruited eight people to come down to Canada Games that first time and either get in the water with me or cheer me on from the sidelines.
The support that night was pretty remarkable.
4. THAT CRAZY DR. LEE
Surgery No. 7 took place on a Friday. Afterwards, Dr. Lee told both Carol-Ann and I that he wouldn't see us on Saturday, but he would be in on Sunday. Dr. Lee is amazing...we routinely saw him twice a day, seven days a week.
At about 5 p.m. on Saturday, Carol-Ann got up, put on her coat and was getting ready to go get some takeout for dinner. We were going over what I wanted to eat when Dr. Lee's head popped out behind the corner. He ducked back for cover. Carol-Ann had no clue what was going on. Dr. Lee popped out again, big, cheezy smile. I knew it was on.
Steve: "I have a feeling that Dr. Lee is coming today..."
Carol-Ann: "I know you love your Dr. Lee, but you know what he told us...he's not coming until tomorrow. Don't get all excited."
Steve: "Carol-Ann?"
Carol-Ann: "You know what he said."
Steve: "Fine...you can just go get dinner then."
She turned, headed around the corner, and was absolutely stunned when she came across the grinning Dr. Lee.
He came into the room, did some strength testing, checked the wound, and said that he had decided to take Sunday off instead of Saturday. We would see him again on Monday, according to him.
Sunday, at about 11 a.m., Carol-Ann got up, got her coat on and was heading out for coffees when Dr. Lee's big, grinning mug popped out from around the corner again. He didn't have to do it twice for me to know what my job was.
Steve: "Carol-Ann...I hate to tell you, but I'm getting that Dr. Lee feeling again."
She was having none of it. She told me to stop it, but was concerned enough to turn around to see if she could see any feet under the curtain that just inside the room's doorway. There were none.
Dr. Lee, being Dr. Lee, had been crafty enough to jump into the bathroom. Our nurse that day, Julie, was coming around the corner at that time and he quietly waved her off. It was her second day on the job -- she had no idea who this strange man in our bathroom was, but she was willing to wait a few minutes to figure it out.
I tried to "warn" Carol-Ann, but she wasn't willing to accept my "help." She turned, went to leave, and was stunned AGAIN.
5. OH, WEBER
My Province colleague, Marc Weber (SHAMED name drop), has a way with people apparently. Sitting in pre-op before Surgery No. 2 (the first rods and screws), I was with Carol-Ann and, this time, Bif Naked.
I was facing the door. And I was more than a little surprised when Weber strutted through. Marc`s a tall, strapping lad. Good looking enough to be a doctor, or so I was told. (Thanks Bif.) That is one of the explanation of how he made it into that highly restricted area.
To this day, I haven`t gotten a straight answer on how he made it there.
6. THE FIRST STEPS AFTER SURGERY NO.7
My first trip to GF ended abruptly. My left leg up and quit on me. I couldn`t get it to move. I basically dragged it around behind me.
I went back to VGH and Dr. Lee and he said that he was 75 per cent sure that there was a problem with the initial rods and screws. They had found that one of the rods had broken via an x-ray earlier. During the surgery, they learned that the other main one was bent.
They try to get you up on your feet the day after surgery, in a bid, basically, to get your body restarted.
That first stand, when the leg didn`t fail, was major for me, because I wasn`t sure until then if the leg would work.
7. END AROUND
I have weak, wonky hips. (That wonky is for former Vancouver Giants trainer Cory Cameron, who hates that I use the word wonky to explain medical conditions.) I have a big, burly buttocks.
In a bid to show me what I should be doing with my hips when walking, physios have routine had to grab my booty. Anne, my regular physio at VGH, is such a sweetie that she worried about how I was taking it.
I told her that not only was I OK with her grabbing my butt, Carol-Ann was good with it, too.
8. BLOCK PARTY
My second stint at VGH, which began in late November after my T-2 collapsed, was much different than my first. I was much sicker. Easily my least favourite memory was Carol-Ann relaying to me that one of the doctors told her after Surgery No. 3 -- The First Infection Washout -- that the next 24 to 48 hours were going to be crucial in my survival. The sheer fear on her face telling that story is something that broke my heart.
After having a huge, blowout party for our first stay, we toned things down for this time. Carol-Ann wanted a list of 10 or so people who could visit, and everybody else was off limits.
I quickly scribbled down some names of people who I thought would come. I forgot Iain MacIntyre (shameless name drop). It was middle of the hockey season...I never reckoned he`d have time.
He showed, but before I could say anything to Carol-Ann, she cut him off at the room`s doorway, physically blocked him out and started back-stepping him into the hallway. I eventually got her calmed down and got him back into room. It wasn`t funny at the time...it is now. Except for maybe Iain.
9. BRETT AND MICHELLE'S WEDDING RECEPTION
Brett plays short on our slopitch team, Michelle pitches. They eloped over the summer and had their reception in October. We got a hall pass from VGH to go.
They had a quiz to decide table order for eating and one of the questions was: "Make up a word using the letters from BRETT and MICHELLE and describe why it best suits their relationship."
The answer from our table of ball teammates: "It doesn't matter what the word is -- Ewen has cancer. We should eat first."
10. BLOGGED DOWN
One of the doctors here at GF is a stylish Russian gentleman, Dr. K. He surprised me when he knew the music of Bif Naked and made a point of introducing himself to her. I wrote about it, right down to how well put together the guy is.
The next day he came up to me and thanked me for noticing his shoes. I didn`t see him as a Bif Naked listener, and I really didn`t see him as a Steve Ewen reader.
Saturday, April 23, 2011
Come on Irene: Yet another role model vaults to forefront in midst of cancer, back surgery rehab
My hero list continues to grow.
I don't know too much about Irene. I think she's a touch older than me. She arrived at G.F. Strong, the Vancouver physical rehab centre, from Vancouver General Hospital, a few days after this, my third instalment there.
We do share the same spine surgeon, Dr. Robert Lee. Dr. Lee regularly asks about other patients of his that I've come across at GF, and during my check-up this week I remembered to tell him about seeing Irene doing laps in the gymnasium with her walker when I was doing the same.
His eyes got big. Real big. So did his smile.
Why? Seems that the doctors at VGH gave Irene a 10 per cent chance of ever walking again after a car accident sent her to hospital. Her injuries were sustained in the cervical vertebrae, the ones nearest the skull.
Irene even did some laps without a walker this week, leaning instead on the arms of a rehab assistant. And she proudly proclaims "I will walk out of here," in regards to her discharge in late May.
Coming across her story and her attitude was exactly what I needed. I had been feeling a little sorry for myself. I had hoped to be home by late Ap ril, and when I was given a May 26 discharge date I frequently put my sulk on.
I focussed too much on the rotten things that I have happened to me, rather than the fact that all the medical people I've talked to have said that I have the chance to walk out of GF as well.
In fact, I have a chance to be healthier and happier and smarter on, lets say, May 30, 2011, than I was May 30, 2010, and that's after a bout with cancer (Solitary Plasmacytoma, in my T-2 vertebrae), two back rebuild surgeries, a muscle-flap surgery, and four surgeries to combat three infections. It is, in part, an indictment of my lifestyle a year ago, but no matter.
This is my fourth straight weekend at home and I feel like I did more yesterday -- highlighted by going out for lunch with my parents, grandmother, an aunt and uncle and Carol-Ann, plus sitting out in the yard for a time -- than I did in my previous three leaves combined. My occupational therapist, Erin, is trying to healthy up my diet -- I even made split-pea soup earlier this week.
I feel like I'm back going in the right direction, and I have at least one more prominent reason why.
Thank you, Irene.
I don't know too much about Irene. I think she's a touch older than me. She arrived at G.F. Strong, the Vancouver physical rehab centre, from Vancouver General Hospital, a few days after this, my third instalment there.
We do share the same spine surgeon, Dr. Robert Lee. Dr. Lee regularly asks about other patients of his that I've come across at GF, and during my check-up this week I remembered to tell him about seeing Irene doing laps in the gymnasium with her walker when I was doing the same.
His eyes got big. Real big. So did his smile.
Why? Seems that the doctors at VGH gave Irene a 10 per cent chance of ever walking again after a car accident sent her to hospital. Her injuries were sustained in the cervical vertebrae, the ones nearest the skull.
Irene even did some laps without a walker this week, leaning instead on the arms of a rehab assistant. And she proudly proclaims "I will walk out of here," in regards to her discharge in late May.
Coming across her story and her attitude was exactly what I needed. I had been feeling a little sorry for myself. I had hoped to be home by late Ap ril, and when I was given a May 26 discharge date I frequently put my sulk on.
I focussed too much on the rotten things that I have happened to me, rather than the fact that all the medical people I've talked to have said that I have the chance to walk out of GF as well.
In fact, I have a chance to be healthier and happier and smarter on, lets say, May 30, 2011, than I was May 30, 2010, and that's after a bout with cancer (Solitary Plasmacytoma, in my T-2 vertebrae), two back rebuild surgeries, a muscle-flap surgery, and four surgeries to combat three infections. It is, in part, an indictment of my lifestyle a year ago, but no matter.
This is my fourth straight weekend at home and I feel like I did more yesterday -- highlighted by going out for lunch with my parents, grandmother, an aunt and uncle and Carol-Ann, plus sitting out in the yard for a time -- than I did in my previous three leaves combined. My occupational therapist, Erin, is trying to healthy up my diet -- I even made split-pea soup earlier this week.
I feel like I'm back going in the right direction, and I have at least one more prominent reason why.
Thank you, Irene.
Monday, April 4, 2011
The morning after: looking back at first weekend off from cancer rehab, as visit home marks first trip to house since late November
I'm wearing all black today. I'm mourning the end of my weekend.
I returned from first weekend pass at G.F. Strong, and my first days at a our New Westminster home since late November, a tad sad that things ended so quick.
It was a perfect weekend in a lot of ways. We got in and out of the house safely. I managed my way around inside with little problem. And I was reminded how much I love it there -- at one point I said to Carol-Ann, "Man, our TV picture is clear. Has it always been like this?"
It has, too, inspired me to get better sooner. The latest goal has been to get out of here and sent home by the last week in April. We'll have a better gauge on whether that's realistic come Thursday, when we have our first planning meeting -- we meet with our therapists, nurses, etc to talk about a possible discharge date.
I've always wanted to get home, but now I want it that much more. And that should only increase -- we've been told that I should be free and clear to go home every weekend now until discharge.
Carol-Ann said that she was surprised, frankly, at how well things went. I wished that my movement was a little smoother, but I'm always like that. (I ran into former Vancouver Whitecaps stalwart Amy Apps in the halls here this morning. She was at GF Strong as part of her physiotherapist training class. I told her how embarrassed I was by the wheelchair and the walker, and she returned a shrug and smile, a shorthand for, "You've had eight surgeries since October...settle yourself down.")
Carol-Ann has always been a glass-half-fulll type, while I'm often a glass-half-empty. Dr. Brad Hallam, the psychologist we met together here, said that he'd have people be realistic thinkers, seeing the "whole glass." (Dr. Hallam was very complimentary of our relationship, saying that he didn't feel the need to see us again.)
Either way, I'm excited to see where we're going next.
I returned from first weekend pass at G.F. Strong, and my first days at a our New Westminster home since late November, a tad sad that things ended so quick.
It was a perfect weekend in a lot of ways. We got in and out of the house safely. I managed my way around inside with little problem. And I was reminded how much I love it there -- at one point I said to Carol-Ann, "Man, our TV picture is clear. Has it always been like this?"
It has, too, inspired me to get better sooner. The latest goal has been to get out of here and sent home by the last week in April. We'll have a better gauge on whether that's realistic come Thursday, when we have our first planning meeting -- we meet with our therapists, nurses, etc to talk about a possible discharge date.
I've always wanted to get home, but now I want it that much more. And that should only increase -- we've been told that I should be free and clear to go home every weekend now until discharge.
Carol-Ann said that she was surprised, frankly, at how well things went. I wished that my movement was a little smoother, but I'm always like that. (I ran into former Vancouver Whitecaps stalwart Amy Apps in the halls here this morning. She was at GF Strong as part of her physiotherapist training class. I told her how embarrassed I was by the wheelchair and the walker, and she returned a shrug and smile, a shorthand for, "You've had eight surgeries since October...settle yourself down.")
Carol-Ann has always been a glass-half-fulll type, while I'm often a glass-half-empty. Dr. Brad Hallam, the psychologist we met together here, said that he'd have people be realistic thinkers, seeing the "whole glass." (Dr. Hallam was very complimentary of our relationship, saying that he didn't feel the need to see us again.)
Either way, I'm excited to see where we're going next.
Sunday, March 27, 2011
Catching up with the cat: Visit to inlaws provides added inspiration in midst of GF Strong rehab
This is going to sting a little for some of you I imagine.
I'm a cat lover now.
It was never the plan. It just happened. Carol-Ann told me early on (I think it was right after "Hi, my name is Carol-Ann") that her cat Figaro was a keeper no matter what, and I slowly began to bond with her old gal. Consider this: Figaro and I are both slow moving, we both don't like people scratching our bellies and we both hang on Carol-Ann's every word.
A dog lover from an early age, I quickly became one of the guys I used to mock.
So, when you consider that we moved Figaro to Carol-Ann's folks' when this whole Solitary Plasmacytoma tumour-back surgery rigmarole started in November and I hadn't seen her since then, Saturday's visit to Ron and Verna's was a big, emotional deal.
Figaro is dealing with her own medical issues now, with a weepy eye. Carol-Ann and her folks are taking her to a specialist on Friday. Figaro is 13 years old now, so using anaesthetic on her isn't ideal, but it may have to happen to figure out what's going on.
Other than the eye, though, she looked good. She purred like usual, her fur looked normal. I have to admit that seeing her gives me a little extra jump to get better.
I do feel like I'm improving. We had just started practising steps here at GF Strong this week, and I successfully managed four outside and two inside at Ron and Verna's.
I had to stand for several minutes while learning to play bridge on Friday, too. And Dr. Robert Lee and Dr. James Boyle, our spine and plastic surgeons, respectively, at VGH signed off on me using a manual wheel chair, instead of a power one, which will help with my overall endurance.
The week ended much better than it started, when I was far too wobbly while cooking my pork chops on Tuesday. (Pork chops good...mobility around the kitchen not so much, but I did learn a lot from my OT, Erin, about vegetables.)
Hopefully, I can parlay all that into a good week next week and get closer to going home with Carol-Ann and, of course, the cat.
I'm a cat lover now.
It was never the plan. It just happened. Carol-Ann told me early on (I think it was right after "Hi, my name is Carol-Ann") that her cat Figaro was a keeper no matter what, and I slowly began to bond with her old gal. Consider this: Figaro and I are both slow moving, we both don't like people scratching our bellies and we both hang on Carol-Ann's every word.
A dog lover from an early age, I quickly became one of the guys I used to mock.
So, when you consider that we moved Figaro to Carol-Ann's folks' when this whole Solitary Plasmacytoma tumour-back surgery rigmarole started in November and I hadn't seen her since then, Saturday's visit to Ron and Verna's was a big, emotional deal.
Figaro is dealing with her own medical issues now, with a weepy eye. Carol-Ann and her folks are taking her to a specialist on Friday. Figaro is 13 years old now, so using anaesthetic on her isn't ideal, but it may have to happen to figure out what's going on.
Other than the eye, though, she looked good. She purred like usual, her fur looked normal. I have to admit that seeing her gives me a little extra jump to get better.
I do feel like I'm improving. We had just started practising steps here at GF Strong this week, and I successfully managed four outside and two inside at Ron and Verna's.
I had to stand for several minutes while learning to play bridge on Friday, too. And Dr. Robert Lee and Dr. James Boyle, our spine and plastic surgeons, respectively, at VGH signed off on me using a manual wheel chair, instead of a power one, which will help with my overall endurance.
The week ended much better than it started, when I was far too wobbly while cooking my pork chops on Tuesday. (Pork chops good...mobility around the kitchen not so much, but I did learn a lot from my OT, Erin, about vegetables.)
Hopefully, I can parlay all that into a good week next week and get closer to going home with Carol-Ann and, of course, the cat.
Tuesday, March 22, 2011
From Bif Naked with love: My buddy meets my doctor and it's all about the shenanigans
Yesterday might have been the wackiest day in hospital or rehab. And, considering that I haven't been home since late November, that's a pretty good statement.
My buddy Bif Naked (shameless name drop) came by G.F. Strong to visit. She does that a few times a week; she's been integral in my recovery. My doctor team stopped by to check in, I introduced them to Bif (using her given name Beth) and didn't think too much of it.
My doctor team is headed up by Dr. K. It's just Dr. K, because no one seems to be able to pronounce his last name. He's Russian, but came to Canada 20 odd years ago. And he's stylish, even debonair (the first time I think I have used that word in copy, although it doesn't often come up in sports reporting). He's got these snazzy ties, and they always have a pocket handkerchief to match. The belt and the shoes are always the same colour.
To Steve-it-down, you could easily see him hanging out with classy Igor Larionov, the former Vancouver Canuck centre. Dr. K would seem to be much more Beethoven than Bif Naked.
Sure enough, who searches out Beth and I in the lobby at GF but Dr. K. He explained that he didn't recognize her at first, but thinks she's a great singer and knows her music. Beth, without skipping a beat, replied, "Well, from Stevie, I'm starting to learn your 'music' and I like what you're doing."
It was that kind of day.
I ran into one of my first physiotherapists, Jackie, for the first time this visit. Jackie's a treat, once you figure her out.
The first time I met her, I thought it was going to be a standard chat. I eased back onto the bench, my arms behind me. She was stunned, "That's your posture? Really? This is rehab. This isn't some summer camp." All we did for the next 30 minutes was posture and she hammered me the second I feel out of form. We met for 40 minutes later in the day, and we did posture again. And when she told that she had a free 30 minutes again later that day, I told her that I would meet her, and I wanted to work posture. (My posture is still horrible, due to inactivity and surgeries, but it's much, much better than it was thanks to Jackie.)
And you know what? As soon as she figured out that I was willing to do the work, she was willing to do the work for me. I needed a new walker -- Jackie had it for me in two minutes. I wanted to learn transferring from a wheelchair to a car so I could go on a weekend drive -- Jackie was meeting me in the parking lot five minutes after I asked.
So, sure enough, I bumped into her yesterday. It wasn't "Hey, how been...I heard you had another surgery..." or something like that.
"So....[you're using] a power chair...what's with that?"
I laughed so hard. It was so Jackie. (Later on, she politicked hard to get me into a special balance class, which is also so Jackie.)
Also yesterday, Carol-Ann and I met with our radiation-oncologist, Dr. Morris, for the first time since November. He said that we wouldn't be finishing off our final five scheduled radiation sessions. He wanted to have some blood tests done, and would get back to me.
Today, I'm a little freaked out about my occupational therapy class, since I having to make pork chops and corn. The mobility is one thing, but I'm much more a BBQ guy than a kitchen guy as well.
Maybe I can bring Bif by as a distraction.
My buddy Bif Naked (shameless name drop) came by G.F. Strong to visit. She does that a few times a week; she's been integral in my recovery. My doctor team stopped by to check in, I introduced them to Bif (using her given name Beth) and didn't think too much of it.
My doctor team is headed up by Dr. K. It's just Dr. K, because no one seems to be able to pronounce his last name. He's Russian, but came to Canada 20 odd years ago. And he's stylish, even debonair (the first time I think I have used that word in copy, although it doesn't often come up in sports reporting). He's got these snazzy ties, and they always have a pocket handkerchief to match. The belt and the shoes are always the same colour.
To Steve-it-down, you could easily see him hanging out with classy Igor Larionov, the former Vancouver Canuck centre. Dr. K would seem to be much more Beethoven than Bif Naked.
Sure enough, who searches out Beth and I in the lobby at GF but Dr. K. He explained that he didn't recognize her at first, but thinks she's a great singer and knows her music. Beth, without skipping a beat, replied, "Well, from Stevie, I'm starting to learn your 'music' and I like what you're doing."
It was that kind of day.
I ran into one of my first physiotherapists, Jackie, for the first time this visit. Jackie's a treat, once you figure her out.
The first time I met her, I thought it was going to be a standard chat. I eased back onto the bench, my arms behind me. She was stunned, "That's your posture? Really? This is rehab. This isn't some summer camp." All we did for the next 30 minutes was posture and she hammered me the second I feel out of form. We met for 40 minutes later in the day, and we did posture again. And when she told that she had a free 30 minutes again later that day, I told her that I would meet her, and I wanted to work posture. (My posture is still horrible, due to inactivity and surgeries, but it's much, much better than it was thanks to Jackie.)
And you know what? As soon as she figured out that I was willing to do the work, she was willing to do the work for me. I needed a new walker -- Jackie had it for me in two minutes. I wanted to learn transferring from a wheelchair to a car so I could go on a weekend drive -- Jackie was meeting me in the parking lot five minutes after I asked.
So, sure enough, I bumped into her yesterday. It wasn't "Hey, how been...I heard you had another surgery..." or something like that.
"So....[you're using] a power chair...what's with that?"
I laughed so hard. It was so Jackie. (Later on, she politicked hard to get me into a special balance class, which is also so Jackie.)
Also yesterday, Carol-Ann and I met with our radiation-oncologist, Dr. Morris, for the first time since November. He said that we wouldn't be finishing off our final five scheduled radiation sessions. He wanted to have some blood tests done, and would get back to me.
Today, I'm a little freaked out about my occupational therapy class, since I having to make pork chops and corn. The mobility is one thing, but I'm much more a BBQ guy than a kitchen guy as well.
Maybe I can bring Bif by as a distraction.
Saturday, March 19, 2011
Crush the Can with humour; trip to Giants' game has pal Kenward bringing up Moose Jaw fiasco
Starting Day 5, Part III at G.F. Strong, the Vancouver physical rehab centre, and have to admit that I'm feeling a little wonky. A good chunk of that could be that I was out last night for two periods at the Vancouver Giants-Kelowna Rockets' game.
After a bout with Solitary Plasmacytoma cancer and eight back surgeries, I'm still not ready for much excitement. We did watch the game from the stands, rather than the Giants' suite like last time with Carol-Ann and I, so that's a step. I was still worn out by the second intermission and wasn't the least little bit on getting caught up in the crowd afterwards, either.
En route to the game (I went with Carla "Solitary Plasmacytoma hater" McAloney, allowing Carol-Ann a hall pass to hang with her buddies) I got a text from Joey Kenward (somewhat shameless name drop) who was in Moose Jaw to celebrate the final days of the rink there, the Crushed Can.
Jo-Jo, being Jo-Jo, had to remind me of my most recent visit to the Can. (That's what the somewhat shameless name drop was for.) It was 2006, the Giants were wrapping up a four-game sweep of the Moose Jaw Warriors, and I had food poisoning and I had it bad.
It could have been worse. Once the symptoms started coming on after a questionable helping of chicken wings, I went straight to the team doc, who gave me some meds that seemed to work a little. (I knew to do this after failing in that regard after getting food poisoning during a Canucks' 2004 playoff game in Calgary. You really haven't been sick until you've been sick in a public washroom with drunk hockey fans. And that's all I really need to say about that.)
I did manage to pull off what I thought was a fairly entertaining pre-game radio interview. The rink had a pronounced dip in the middle, so from the pressbox on the north side you can't see the top eight rows of seats south side. Jo-Jo had always explained to me as "If the bus driver gets in a knife fight in row 15, I can't tell from the press box. I was getting to that part of the story and realized I couldn't use Joey's version, so I blurted out the first thing that came to mind.
"If strippers were performing an act in Row 15, I wouldn't know from the press box."
Yeah, stay classy.
With all that, I wasn't out the woods from the sickness, though. By game time, I was probably stumbling around worse than I do now. (My walking, albeit with a walker has improved drastically of late.) After the game, when I went to get quotes, several players started chanting "Chicken Wings, Chicken Wings." They had obviously heard. Team captain Mark Fistric hadn't heard or had heard and didn't care because he picked me up in a bear hug, started carrying me around and said, "You're my dawg...you're my dawg." (I'm a big dude now, but I was a bigger dude then. The fact some 19-year-old kid could do that scared me.)
By the time I finished my stories, I couldn't step up for long periods, so I had to crawl my way down the stairs and out of the stands.
Nice.
Fast forward to today, I'm feeling as well as I've felt in months. I still get frustrated with how wobbly I am, but I'm trying to be patient. (I'm supposed to cook on Tuesday and stand for several minutes without any asssistance, and that's scaring me.)
We're on the Spine Floor this time, after being on the Brain Injury and Neuro-muscular floors on our past two trips, which means we get a whole new team of doctors, physios and occupational therapists. Everybody seems to be as ultra professional, just like the teams we've had here before.
After a bout with Solitary Plasmacytoma cancer and eight back surgeries, I'm still not ready for much excitement. We did watch the game from the stands, rather than the Giants' suite like last time with Carol-Ann and I, so that's a step. I was still worn out by the second intermission and wasn't the least little bit on getting caught up in the crowd afterwards, either.
En route to the game (I went with Carla "Solitary Plasmacytoma hater" McAloney, allowing Carol-Ann a hall pass to hang with her buddies) I got a text from Joey Kenward (somewhat shameless name drop) who was in Moose Jaw to celebrate the final days of the rink there, the Crushed Can.
Jo-Jo, being Jo-Jo, had to remind me of my most recent visit to the Can. (That's what the somewhat shameless name drop was for.) It was 2006, the Giants were wrapping up a four-game sweep of the Moose Jaw Warriors, and I had food poisoning and I had it bad.
It could have been worse. Once the symptoms started coming on after a questionable helping of chicken wings, I went straight to the team doc, who gave me some meds that seemed to work a little. (I knew to do this after failing in that regard after getting food poisoning during a Canucks' 2004 playoff game in Calgary. You really haven't been sick until you've been sick in a public washroom with drunk hockey fans. And that's all I really need to say about that.)
I did manage to pull off what I thought was a fairly entertaining pre-game radio interview. The rink had a pronounced dip in the middle, so from the pressbox on the north side you can't see the top eight rows of seats south side. Jo-Jo had always explained to me as "If the bus driver gets in a knife fight in row 15, I can't tell from the press box. I was getting to that part of the story and realized I couldn't use Joey's version, so I blurted out the first thing that came to mind.
"If strippers were performing an act in Row 15, I wouldn't know from the press box."
Yeah, stay classy.
With all that, I wasn't out the woods from the sickness, though. By game time, I was probably stumbling around worse than I do now. (My walking, albeit with a walker has improved drastically of late.) After the game, when I went to get quotes, several players started chanting "Chicken Wings, Chicken Wings." They had obviously heard. Team captain Mark Fistric hadn't heard or had heard and didn't care because he picked me up in a bear hug, started carrying me around and said, "You're my dawg...you're my dawg." (I'm a big dude now, but I was a bigger dude then. The fact some 19-year-old kid could do that scared me.)
By the time I finished my stories, I couldn't step up for long periods, so I had to crawl my way down the stairs and out of the stands.
Nice.
Fast forward to today, I'm feeling as well as I've felt in months. I still get frustrated with how wobbly I am, but I'm trying to be patient. (I'm supposed to cook on Tuesday and stand for several minutes without any asssistance, and that's scaring me.)
We're on the Spine Floor this time, after being on the Brain Injury and Neuro-muscular floors on our past two trips, which means we get a whole new team of doctors, physios and occupational therapists. Everybody seems to be as ultra professional, just like the teams we've had here before.
Monday, March 7, 2011
Youth was serving: fresh-faced plastic surgeons lend hand in cancer comeback
Maybe they grow plastic surgeons real young around here. Or maybe they practice face lifts on each other.
Or maybe I am firmly an old fart.
Whatever the reason, my eighth surgery, a "flap," to help close the wound in my back, has made me aware of how many apparent young phenoms work in plastics at VGH. We've met a handful of surgeons leading up to and following my operation last Tuesday and, to be honest, I was continually left making Doogie Howser references. Of course, I made them only to myself and Carol-Ann, since this group probably never saw the TV show, which was in production from 1989-93.
In interest of full disclosure (my old favourite line makes a return), the treatment we've received from the plastics (as they are called)has been top shelf. They were very good about letting us know their A plan and their fallback strategy in case things didn't work initially.
Luckily for Carol-Ann and I, their idea came together on the first go. In fact, Carol-Ann says that plastics surgeon Dr. Boyle told her, "Things couldn't have gone better."
To Steve-it-down, the doctors took parts of my trapezius muscles and folded them to fill a void in the middle of my back, which was created by three infection washout surgeries. The infection was a result of needing a back reconstruction surgery just days after completing my 20th radiation treatment, which was due to a Solitary Plasmacytoma tumor camping out in my T-2 vertebrae. (My good friend Carla McAloney says that I don't have to mention the Solitary Plasmacytoma every blog. I say, "What does she have against a Solitary Plasmacytoma?" Or maybe
she doesn't appreciate new readers, ones who haven't heard about my Solitary Plasmacytoma? Or maybe doesn't like big words, like Solitary Plasmacytoma? Oh, Carla.)
Our spine surgeon, Dr. Robert Lee, tried to get the wound to close, but the combination of radiated skin and nothing behind it to stitch to made it impossible.
For what it is worth, this likely the most pain I've been in since the early stages of the Solitary Plasmacytoma (Take that, Snarla). The plastics say it's completely normal.
I should go back to GF Strong for a third try at rehab later this week hopefully.
Or maybe I am firmly an old fart.
Whatever the reason, my eighth surgery, a "flap," to help close the wound in my back, has made me aware of how many apparent young phenoms work in plastics at VGH. We've met a handful of surgeons leading up to and following my operation last Tuesday and, to be honest, I was continually left making Doogie Howser references. Of course, I made them only to myself and Carol-Ann, since this group probably never saw the TV show, which was in production from 1989-93.
In interest of full disclosure (my old favourite line makes a return), the treatment we've received from the plastics (as they are called)has been top shelf. They were very good about letting us know their A plan and their fallback strategy in case things didn't work initially.
Luckily for Carol-Ann and I, their idea came together on the first go. In fact, Carol-Ann says that plastics surgeon Dr. Boyle told her, "Things couldn't have gone better."
To Steve-it-down, the doctors took parts of my trapezius muscles and folded them to fill a void in the middle of my back, which was created by three infection washout surgeries. The infection was a result of needing a back reconstruction surgery just days after completing my 20th radiation treatment, which was due to a Solitary Plasmacytoma tumor camping out in my T-2 vertebrae. (My good friend Carla McAloney says that I don't have to mention the Solitary Plasmacytoma every blog. I say, "What does she have against a Solitary Plasmacytoma?" Or maybe
she doesn't appreciate new readers, ones who haven't heard about my Solitary Plasmacytoma? Or maybe doesn't like big words, like Solitary Plasmacytoma? Oh, Carla.)
Our spine surgeon, Dr. Robert Lee, tried to get the wound to close, but the combination of radiated skin and nothing behind it to stitch to made it impossible.
For what it is worth, this likely the most pain I've been in since the early stages of the Solitary Plasmacytoma (Take that, Snarla). The plastics say it's completely normal.
I should go back to GF Strong for a third try at rehab later this week hopefully.
Wednesday, February 23, 2011
Chair wear and tear: Trying to find ways to cope with having to wheel into a Giants' game
I'm going to the Vancouver Giants' game Friday night. Part of me is looking at it as another Christmas morning. Part of me of scared to bits.
I've covered the Giants for the Province (shameless plug for my employer) since the 2004-05 season and I'm freakishly at home at the Pacific Coliseum. I know all the arena staff, all the little shortcuts, all the tricks. And I love feel of the building -- the Giants have a hockey-savvy, blue-collar fan base that appreciates hustle and isn't shy about it. (The joint should be rocking on Milan Lucic Night.)
The problem for me in all of this is that I'm not ready to walk and I'll have to go in a wheelchair and a motorized one to boot. (I'm on restricted movement since ripping out some stitches on Saturday.) I wonder what people will think. To me, the motorized chair doesn't fit, since I'm feeling the best I've felt since November, when we were just dealing with cancer. (Remember when we just had cancer? Just a Solitary Plasmacytoma tumour in the T-2 vertebrae? That was cool. Now we've got these seven surgeries on the back to recover from.)
I know that's my problem, I know that's in my head. I know that's my stigma. I hate that that is the way I feel, but, to quote a famous Canadian, it is what it is.
I went to a Giants' game on a walker earlier this season and it was the same way. The Giants' staff are good, good folk, and, for what it's worth, they went out of their way to make me feel better about it. I told play-by-play man Dan Elliott (shameless name drop), who's a longtime buddy of mine and slopitch teammate (more shamelessness) that I didn't feel too stable and was a tad wobbly, and he looked me in the eye and said, "Nothing bad will happen to you in our pressbox. Nothing, I tell you."Sure enough, he assigned an intern to look in on me every five minutes or so, and then checked in himself during intermissions. (Jumbo, flat out, is one of the best people I know.)
Intermission host Brook Ward (shameless name drop), too, was very kind. I complained about the walker, and he said, "I'm sure I'd feel the same way, but you're the only guy here who really sees the walker. We're just happy that you made it out."
As Sports Talk listeners can attest, that's one of the more eloquent speeches that the Brookster has ever uttered. And one of the shortest. (Like it was going to mushy all the way through. Get over it, Brook.)
It's funny how being this sick for this long plays with your head. I have massive guilt about how this has affected Carol-Ann. My Cancer Coach Bif Naked (yet another shameless name drop) says that it's quite normal -- patient guilt, she calls it.
Carol-Ann told me recently that her field hockey playoffs were coming up and her team might be short players, and then asked who I might want to come hang out with me when she was away playing. I had completely forgotten that her league had re-started when the weather started to get better. I felt like a jerk that she had stopped playing and I didn't realize it, because I know how much she loves to run around and get some frustrations out.
Now, Carol-Ann's sharp. Super sharp. And if she wanted to play in those games and take a break from being with me, she would have found a way to do it. It's her decision. I get the logic, but the emotion isn't quite catching on just yet.
To that end, I'm going to see G.F. Strong staff psychologist Dr. Brad Hallam Friday and talk about the things that are troubling me. I have no problem admitting that I'm going to see a psychologist; I gave up trying to be cool long ago. To pretend that this hasn't been as hard on my mind as it has on my body is foolish.
I just hope the guy likes hockey and wants to talk a little about the Giants' game.
I've covered the Giants for the Province (shameless plug for my employer) since the 2004-05 season and I'm freakishly at home at the Pacific Coliseum. I know all the arena staff, all the little shortcuts, all the tricks. And I love feel of the building -- the Giants have a hockey-savvy, blue-collar fan base that appreciates hustle and isn't shy about it. (The joint should be rocking on Milan Lucic Night.)
The problem for me in all of this is that I'm not ready to walk and I'll have to go in a wheelchair and a motorized one to boot. (I'm on restricted movement since ripping out some stitches on Saturday.) I wonder what people will think. To me, the motorized chair doesn't fit, since I'm feeling the best I've felt since November, when we were just dealing with cancer. (Remember when we just had cancer? Just a Solitary Plasmacytoma tumour in the T-2 vertebrae? That was cool. Now we've got these seven surgeries on the back to recover from.)
I know that's my problem, I know that's in my head. I know that's my stigma. I hate that that is the way I feel, but, to quote a famous Canadian, it is what it is.
I went to a Giants' game on a walker earlier this season and it was the same way. The Giants' staff are good, good folk, and, for what it's worth, they went out of their way to make me feel better about it. I told play-by-play man Dan Elliott (shameless name drop), who's a longtime buddy of mine and slopitch teammate (more shamelessness) that I didn't feel too stable and was a tad wobbly, and he looked me in the eye and said, "Nothing bad will happen to you in our pressbox. Nothing, I tell you."Sure enough, he assigned an intern to look in on me every five minutes or so, and then checked in himself during intermissions. (Jumbo, flat out, is one of the best people I know.)
Intermission host Brook Ward (shameless name drop), too, was very kind. I complained about the walker, and he said, "I'm sure I'd feel the same way, but you're the only guy here who really sees the walker. We're just happy that you made it out."
As Sports Talk listeners can attest, that's one of the more eloquent speeches that the Brookster has ever uttered. And one of the shortest. (Like it was going to mushy all the way through. Get over it, Brook.)
It's funny how being this sick for this long plays with your head. I have massive guilt about how this has affected Carol-Ann. My Cancer Coach Bif Naked (yet another shameless name drop) says that it's quite normal -- patient guilt, she calls it.
Carol-Ann told me recently that her field hockey playoffs were coming up and her team might be short players, and then asked who I might want to come hang out with me when she was away playing. I had completely forgotten that her league had re-started when the weather started to get better. I felt like a jerk that she had stopped playing and I didn't realize it, because I know how much she loves to run around and get some frustrations out.
Now, Carol-Ann's sharp. Super sharp. And if she wanted to play in those games and take a break from being with me, she would have found a way to do it. It's her decision. I get the logic, but the emotion isn't quite catching on just yet.
To that end, I'm going to see G.F. Strong staff psychologist Dr. Brad Hallam Friday and talk about the things that are troubling me. I have no problem admitting that I'm going to see a psychologist; I gave up trying to be cool long ago. To pretend that this hasn't been as hard on my mind as it has on my body is foolish.
I just hope the guy likes hockey and wants to talk a little about the Giants' game.
Monday, February 21, 2011
I've got the power; new stitches prompt switch to motorized wheelchair for short period
The bad news is that the new stitches in my back has led to our surgeon, Dr. Robert Lee, limiting my arm movements for the next two weeks.
The really bad news, at least for the people at G.F. Strong and the general public around King Ed and Laurel in Vancouver, is that they've given me a power wheelchair.
Oh. Mercy. Think of the havoc I can cause with a motor and wheels?
I'm feeling strong and confident, so I think I'll be back doing a lot of walking through the next couple of weeks, but the power chair does have a certain video game appeal to it, since it's controlled by a joystick.
As for the wound, it's a little antsy at times, but it's not too surprising, considering the skin there has been through 20 radiation sessions to battle back my Solitary Plasmacytoma tumour and the seven surgeries. It does seem to be getting more under control after Dr. Lee's on-the-fly stitch session on Saturday.
The really bad news, at least for the people at G.F. Strong and the general public around King Ed and Laurel in Vancouver, is that they've given me a power wheelchair.
Oh. Mercy. Think of the havoc I can cause with a motor and wheels?
I'm feeling strong and confident, so I think I'll be back doing a lot of walking through the next couple of weeks, but the power chair does have a certain video game appeal to it, since it's controlled by a joystick.
As for the wound, it's a little antsy at times, but it's not too surprising, considering the skin there has been through 20 radiation sessions to battle back my Solitary Plasmacytoma tumour and the seven surgeries. It does seem to be getting more under control after Dr. Lee's on-the-fly stitch session on Saturday.
Sunday, February 20, 2011
He'll be coming down the mountain to do my stitches; spine surgeon amazes yet again
How will we ever thank Dr. Robert Lee?
Seriously. We could use the ideas.
There have been a bus load of people who have been integral to Carol-Ann and I so far surviving this ordeal, one that began with a tumour being found in my T-2 vertebrae in October and has included seven surgeries, two of which featuring rods and screws being placed in my back to stabilize it. Lee, a spine surgeon at VGH, has been particularly paramount.
The good doctor, who got into a battle at VGH to get my biopsy done in a timely manner after it was initially postponed and was keeping tabs on me while visiting his family in England in early December with such fervour that he telephoned Carol-Ann at the hospital to make a couple of suggestions about my care, added to his list of good deeds on Saturday when he had us meet him at VGH to sew up a wound on my back after I had torn out some stitches rehabbing at GF Strong.
The catch? He was on his day off, skiing at Whistler, and hustled down the mountain and back to the hospital to meet us.
(Worried about the new stitches, Dr. Lee has put restrictions on my mobility over the next two weeks, including keeping me from propelling my own wheelchair. I'm not pleased about it, but I'll make it through. For what it's worth, I haven't felt this strong physically or mentally since November.)
The very fact that we even had the surgeon's cell number has stunned nurses both at VGH and GF.
You read the papers (particularly the Province...shameless sucking up to my employer) and you watch the nightly news on TV and there are routinely stories about how messed the B.C. medical system is. Sorry. It's like nothing we've experienced. People have gone out their way, done more than their share, to make these last few months a little less nightmarish. Dr. Lee, of course, has been at the top of that list.
If you have any clue how we can show our appreciation, drop me a line.
Seriously. We could use the ideas.
There have been a bus load of people who have been integral to Carol-Ann and I so far surviving this ordeal, one that began with a tumour being found in my T-2 vertebrae in October and has included seven surgeries, two of which featuring rods and screws being placed in my back to stabilize it. Lee, a spine surgeon at VGH, has been particularly paramount.
The good doctor, who got into a battle at VGH to get my biopsy done in a timely manner after it was initially postponed and was keeping tabs on me while visiting his family in England in early December with such fervour that he telephoned Carol-Ann at the hospital to make a couple of suggestions about my care, added to his list of good deeds on Saturday when he had us meet him at VGH to sew up a wound on my back after I had torn out some stitches rehabbing at GF Strong.
The catch? He was on his day off, skiing at Whistler, and hustled down the mountain and back to the hospital to meet us.
(Worried about the new stitches, Dr. Lee has put restrictions on my mobility over the next two weeks, including keeping me from propelling my own wheelchair. I'm not pleased about it, but I'll make it through. For what it's worth, I haven't felt this strong physically or mentally since November.)
The very fact that we even had the surgeon's cell number has stunned nurses both at VGH and GF.
You read the papers (particularly the Province...shameless sucking up to my employer) and you watch the nightly news on TV and there are routinely stories about how messed the B.C. medical system is. Sorry. It's like nothing we've experienced. People have gone out their way, done more than their share, to make these last few months a little less nightmarish. Dr. Lee, of course, has been at the top of that list.
If you have any clue how we can show our appreciation, drop me a line.
Wednesday, February 9, 2011
Another surgery on cancer comeback trail and that's no bull
Let's try to make this quick.
Went to GF Strong. Improved initially, but then left leg stopped working. Sent back to VGH for MRI, but it found nothing. Back to GF. Didn't improve. Back to VGH, had surgery. Took out broken rod and drained fluid. Also took out "good" rod, which was bent. In their place, Dr. Robert Lee went with four rods, doubling up on his construction at the lower part of the spine.
Got that? Good.
It is a massive step back, but somehow Carol-Ann is staying positive and I am trying to follow her lead. We will be at VGH until early next week, Dr. Lee hopes, and then try GF again. It is hard to believe that this all started with a Solitary Plasmacytoma in the T-2 vertebrae and has since led to seven surgeries, including two major back ones.
We are still having fun. We got to talking about rodeos with Dr. Lee, a Brit, and somebody joked about me riding bulls, much to Dr. Lee's chagrin, considering his most recent handiwork.
To be frank, I am a big wuss. Carol-Ann brought up me being afraid of donkeys, after watching one donkey put the boots to another donkey at 108 Mile a couple of summers ago.
Lee's response? "But you're not a donkey, Steve."
Little does he know, of course.
Went to GF Strong. Improved initially, but then left leg stopped working. Sent back to VGH for MRI, but it found nothing. Back to GF. Didn't improve. Back to VGH, had surgery. Took out broken rod and drained fluid. Also took out "good" rod, which was bent. In their place, Dr. Robert Lee went with four rods, doubling up on his construction at the lower part of the spine.
Got that? Good.
It is a massive step back, but somehow Carol-Ann is staying positive and I am trying to follow her lead. We will be at VGH until early next week, Dr. Lee hopes, and then try GF again. It is hard to believe that this all started with a Solitary Plasmacytoma in the T-2 vertebrae and has since led to seven surgeries, including two major back ones.
We are still having fun. We got to talking about rodeos with Dr. Lee, a Brit, and somebody joked about me riding bulls, much to Dr. Lee's chagrin, considering his most recent handiwork.
To be frank, I am a big wuss. Carol-Ann brought up me being afraid of donkeys, after watching one donkey put the boots to another donkey at 108 Mile a couple of summers ago.
Lee's response? "But you're not a donkey, Steve."
Little does he know, of course.
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